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<blockquote data-quote="dreamer" data-source="post: 143694" data-attributes="member: 1697"><p>Yes, my doctor gave me 1 mg 2 mg and 5 mg pills so I could wean very slow, now, too. Altho I can tell if I take even 1 mg less than usual...so I take diff doses diff days so I can wean, but I also have permission to add back on in a bad flare. (with set dose limits) BECUZ it will take less overall if I do not let anything get too out of control. </p><p>I use a weekly pill minder to keep track of what days I take how much, and I am gently working on weaning down. I am hoping dietary changes might also help with some of what the auto immune disease causes. Of course it is too soon to tell much, but I am noticeing certain foods that DO make the illness worse (so I can avoid those) , and I am experimenting with foods that seem to make it a little better. I forgot- my vision was also seriously affected - mostl likely mostly from the blood sugar- but, already I am actually SEEING a huge improvement with THAT (carrrots every day altho they spike blood sugar some, and blueberries, just a few cuz again, sugar.....and oat, becuz it helps and cinnamin, both help keep blood sugar lower and I am steering more away from wheat, especially more concentrated forms, altho wheat IS a good fiber, seems it irritates my auto immune illness....and possibly dairy, especially hard for me cuz I LOVE dairy)</p><p></p><p>So- I am working with a combination of methods to work on weaning off steroids. </p><p>BUT -in all honesty, I knew before I began steroids just what the risks were, and at the time, I accepted the risks even gladly, becuz.....I had zero life, except for just breathing, much of the time. I have made so sure to remember every single day just what a gift this has been- even if it is now "payback time" Every time I brush my own teeth, or comb my own hair, (what little is left, LOL- another medication made that thin a LOT)- everytime I wake up and can step on the floor of my own accord. My kids call the pred the magic medication. I do remind them it does come with a big price tag, and I remind myself, too.</p><p></p><p>Oh yeah, and yeah I have a moon face, too, now....and the hump at top of my back just below neck between my shoulders......I have not had bone density tested but I do take calcium and Vit D daily....</p><p></p><p>Oh and I also gained- 40 pounds, which I really in no way needed, I was soft before.....yeesh. The other thing was my skin. it got thinner and much more fragile.....almost like onion skin? an it got drier. I have always had very oily skin, but now it cracks. I cannot remember if this is from illness or pred or maybe both, but, the fat layer directly under my skin (especially noticeable on my hands) also thinned out considerably.</p></blockquote><p></p>
[QUOTE="dreamer, post: 143694, member: 1697"] Yes, my doctor gave me 1 mg 2 mg and 5 mg pills so I could wean very slow, now, too. Altho I can tell if I take even 1 mg less than usual...so I take diff doses diff days so I can wean, but I also have permission to add back on in a bad flare. (with set dose limits) BECUZ it will take less overall if I do not let anything get too out of control. I use a weekly pill minder to keep track of what days I take how much, and I am gently working on weaning down. I am hoping dietary changes might also help with some of what the auto immune disease causes. Of course it is too soon to tell much, but I am noticeing certain foods that DO make the illness worse (so I can avoid those) , and I am experimenting with foods that seem to make it a little better. I forgot- my vision was also seriously affected - mostl likely mostly from the blood sugar- but, already I am actually SEEING a huge improvement with THAT (carrrots every day altho they spike blood sugar some, and blueberries, just a few cuz again, sugar.....and oat, becuz it helps and cinnamin, both help keep blood sugar lower and I am steering more away from wheat, especially more concentrated forms, altho wheat IS a good fiber, seems it irritates my auto immune illness....and possibly dairy, especially hard for me cuz I LOVE dairy) So- I am working with a combination of methods to work on weaning off steroids. BUT -in all honesty, I knew before I began steroids just what the risks were, and at the time, I accepted the risks even gladly, becuz.....I had zero life, except for just breathing, much of the time. I have made so sure to remember every single day just what a gift this has been- even if it is now "payback time" Every time I brush my own teeth, or comb my own hair, (what little is left, LOL- another medication made that thin a LOT)- everytime I wake up and can step on the floor of my own accord. My kids call the pred the magic medication. I do remind them it does come with a big price tag, and I remind myself, too. Oh yeah, and yeah I have a moon face, too, now....and the hump at top of my back just below neck between my shoulders......I have not had bone density tested but I do take calcium and Vit D daily.... Oh and I also gained- 40 pounds, which I really in no way needed, I was soft before.....yeesh. The other thing was my skin. it got thinner and much more fragile.....almost like onion skin? an it got drier. I have always had very oily skin, but now it cracks. I cannot remember if this is from illness or pred or maybe both, but, the fat layer directly under my skin (especially noticeable on my hands) also thinned out considerably. [/QUOTE]
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