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Heart Broken over Daughter
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<blockquote data-quote="Josie" data-source="post: 310236" data-attributes="member: 1792"><p>It is a 2 year headache without any break. There are times when it is worse than others, but it hasn't been this bad since the beginning.</p><p> </p><p>It was the Children's Hospital here. There was a pediatric neurologist and lots of other doctors since it is a teaching hospital.</p><p> </p><p>There is a headache clinic 200 miles away that has said they will take her as a patient. They have a list of abortive IV treatments for headaches. I am most interested in their use of propofol at low doses. They claim a 97.5 % success rate in stopping headaches, not just migraines. She has already had a few of their treatments or taken the medication orally.</p><p> </p><p>We have a therapist we have been seeing off and on for 6 years. I just recently went back to her. She has offered to come see my daughter at the house, if necessary. </p><p> </p><p>They were concerned about depression at the hospital, too. They asked her how many happy days she had. She said "not very many". I asked them to think about when they were sick, if they were happy. At our last meeting with the neurologist, he did say depression caused by illness which then makes the illness worse. Personally, I believe the depression is a tiny part, if any, of the cause of the problem. </p><p> </p><p>Earlier this year, she drew a picture and wrote "Life is Good" on it. I was so touched that she would write that, because to me, it looked like her life was awful. She was more optimistic then and had happy times throughout the day. Now, it is hard for either one of us to believe that this will end.</p><p> </p><p>She is depressed. I am depressed. One of the doctors asked me if I had Obsessive Compulsive Disorder (OCD)! Not does anyone else in the family have it. (I am sure that I do not.) </p><p> </p><p>We did extensive CBT/ERP therapy with my daughter earlier in the year to work on her Obsessive Compulsive Disorder (OCD) to make sure that wasn't what was keeping her in her bed. Even the therapist agreed that he could see a different look on her face when she was feeling worse than when it was her anxiety. When we went out of town to her doctor, we tried to do some sight seeing but built in some rest periods for her. She was out of her bed more then but it was clear at the end of the day that she was in pain and overdoing it. Same thing when we are at home but have company. She tries to be social but you can tell by the look on her face, she doesn't feel well.</p><p> </p><p>Her headache was already bad when they did the spinal tap. It is hard to know if that actually made it worse or not. </p><p> </p><p>She says she left the hospital too soon. But there is nothing else they can do. That is so depressing to me.</p><p> </p><p>I can see why some people end their lives over something like this.</p></blockquote><p></p>
[QUOTE="Josie, post: 310236, member: 1792"] It is a 2 year headache without any break. There are times when it is worse than others, but it hasn't been this bad since the beginning. It was the Children's Hospital here. There was a pediatric neurologist and lots of other doctors since it is a teaching hospital. There is a headache clinic 200 miles away that has said they will take her as a patient. They have a list of abortive IV treatments for headaches. I am most interested in their use of propofol at low doses. They claim a 97.5 % success rate in stopping headaches, not just migraines. She has already had a few of their treatments or taken the medication orally. We have a therapist we have been seeing off and on for 6 years. I just recently went back to her. She has offered to come see my daughter at the house, if necessary. They were concerned about depression at the hospital, too. They asked her how many happy days she had. She said "not very many". I asked them to think about when they were sick, if they were happy. At our last meeting with the neurologist, he did say depression caused by illness which then makes the illness worse. Personally, I believe the depression is a tiny part, if any, of the cause of the problem. Earlier this year, she drew a picture and wrote "Life is Good" on it. I was so touched that she would write that, because to me, it looked like her life was awful. She was more optimistic then and had happy times throughout the day. Now, it is hard for either one of us to believe that this will end. She is depressed. I am depressed. One of the doctors asked me if I had Obsessive Compulsive Disorder (OCD)! Not does anyone else in the family have it. (I am sure that I do not.) We did extensive CBT/ERP therapy with my daughter earlier in the year to work on her Obsessive Compulsive Disorder (OCD) to make sure that wasn't what was keeping her in her bed. Even the therapist agreed that he could see a different look on her face when she was feeling worse than when it was her anxiety. When we went out of town to her doctor, we tried to do some sight seeing but built in some rest periods for her. She was out of her bed more then but it was clear at the end of the day that she was in pain and overdoing it. Same thing when we are at home but have company. She tries to be social but you can tell by the look on her face, she doesn't feel well. Her headache was already bad when they did the spinal tap. It is hard to know if that actually made it worse or not. She says she left the hospital too soon. But there is nothing else they can do. That is so depressing to me. I can see why some people end their lives over something like this. [/QUOTE]
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