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Heart Broken over Daughter
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<blockquote data-quote="Star*" data-source="post: 310586" data-attributes="member: 4964"><p>Hi Hope.....I've got Hiiiii hopes...</p><p></p><p>I am a severe migraine survivor. I have overcome the 2 year migraine with bouts of crippling migraines that left me with over the top blood pressures in stroke range, unable to walk and inability to speak. They are horrible. The MRI's looking for the pituitary tumors are even worse for me. </p><p></p><p>I finally saw a good neurologist here in Columbia, SC. To me since I am no longer in pain daily he is a genius. I had to keep a migraine diary very detailed for about 3 months. It listed the weather, barometric pressure, sunny, rain - it listed every single thing I ate, drank and times. It listed medications I took for trying to stave off headaches and of course trips to the ER. </p><p></p><p>I took that to him and dropped it off. I have been on every kind of medication, tried every herbal remedy and live for ice packs, dark rooms, silence and the love of a good therapy dog. This is what finally worked for me. </p><p></p><p>I can't eat McDonalds ever again. There is something in their beef that makes me instantly have a headache. Most beef will give me a headache. Most commercial beef wholesalers inject their beef with chemicals to enhance the flavors and more than likely it's one of those chemicals that causes my migraines to flare. I hate meat anyway - so win/win. </p><p></p><p>I am also a hormonal migraine person and there is a migraine medication out now that is JUST for pre-period times. Starts with an F....can't remember the name. I can't take it - but most women find it tremendously helpful. </p><p></p><p>I have had to eliminate caffeine. My body LOVES caffeine and going off of it was heck on earth - hurt worse than the migraines. I have one cup of coffee a day - (a big one) and limit anything like Excederine Migraine pills - they are BAD 4 U. NO NO if you suffer from migraines....you get in a bad habit. </p><p></p><p>As far as a daily maintenance - I take Topamax. It's not a cure all and I still have low instances of daily pressure but it's manageable. I also have my lifesaver for when the light Aura starts - RELPAX. Without Relpax? I would be in the ER - at least once a week. It's expensive but Pfizer has a patience assistance program. You can't take Relpax daily - the most you are supposed to take is 6 - some months I take 9 - better than the bill for the ER. They're about $36 a piece. </p><p></p><p>I don't know if she's tried any or either of these maintenance programs - or had a migraine diary to take TO a neurologist....but if you get a good neuro - they'll ask her to do this - if you don't get a good neuro? No diary for migraines. See? </p><p></p><p>Sending you peaceful times in her head. Also I get a lot of relief packing my head in ice...I love ice packs...my head literally feels like it's on fire so ice is a blessing. If you take RElpax BEFORE you really get in pain it can stop the headache - you (sorry for the info) but pee out the headace. Can't explain it better than that. It must have a diuretic in it. </p><p></p><p>Hope maybe this will help. </p><p></p><p>Also my son took the Tramadol medicine your Daughter is on and it gave him HORRIBLE headaches. It also made him gain beaucoups weight. </p><p></p><p>Hugs = </p><p>STar</p></blockquote><p></p>
[QUOTE="Star*, post: 310586, member: 4964"] Hi Hope.....I've got Hiiiii hopes... I am a severe migraine survivor. I have overcome the 2 year migraine with bouts of crippling migraines that left me with over the top blood pressures in stroke range, unable to walk and inability to speak. They are horrible. The MRI's looking for the pituitary tumors are even worse for me. I finally saw a good neurologist here in Columbia, SC. To me since I am no longer in pain daily he is a genius. I had to keep a migraine diary very detailed for about 3 months. It listed the weather, barometric pressure, sunny, rain - it listed every single thing I ate, drank and times. It listed medications I took for trying to stave off headaches and of course trips to the ER. I took that to him and dropped it off. I have been on every kind of medication, tried every herbal remedy and live for ice packs, dark rooms, silence and the love of a good therapy dog. This is what finally worked for me. I can't eat McDonalds ever again. There is something in their beef that makes me instantly have a headache. Most beef will give me a headache. Most commercial beef wholesalers inject their beef with chemicals to enhance the flavors and more than likely it's one of those chemicals that causes my migraines to flare. I hate meat anyway - so win/win. I am also a hormonal migraine person and there is a migraine medication out now that is JUST for pre-period times. Starts with an F....can't remember the name. I can't take it - but most women find it tremendously helpful. I have had to eliminate caffeine. My body LOVES caffeine and going off of it was heck on earth - hurt worse than the migraines. I have one cup of coffee a day - (a big one) and limit anything like Excederine Migraine pills - they are BAD 4 U. NO NO if you suffer from migraines....you get in a bad habit. As far as a daily maintenance - I take Topamax. It's not a cure all and I still have low instances of daily pressure but it's manageable. I also have my lifesaver for when the light Aura starts - RELPAX. Without Relpax? I would be in the ER - at least once a week. It's expensive but Pfizer has a patience assistance program. You can't take Relpax daily - the most you are supposed to take is 6 - some months I take 9 - better than the bill for the ER. They're about $36 a piece. I don't know if she's tried any or either of these maintenance programs - or had a migraine diary to take TO a neurologist....but if you get a good neuro - they'll ask her to do this - if you don't get a good neuro? No diary for migraines. See? Sending you peaceful times in her head. Also I get a lot of relief packing my head in ice...I love ice packs...my head literally feels like it's on fire so ice is a blessing. If you take RElpax BEFORE you really get in pain it can stop the headache - you (sorry for the info) but pee out the headace. Can't explain it better than that. It must have a diuretic in it. Hope maybe this will help. Also my son took the Tramadol medicine your Daughter is on and it gave him HORRIBLE headaches. It also made him gain beaucoups weight. Hugs = STar [/QUOTE]
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