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Hello from australia - intro
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<blockquote data-quote="therese005us" data-source="post: 275669" data-attributes="member: 7416"><p>Hi everyone I haven't had much time to check in here to see if anyone wrote back. We've had a busy week. We had flooding rains and so this little cherub has been home for a few days from school. I've been more than a little worn out and frustrated. I don't think I'm doing too well at the moment in the patience department, so don't give me pats on the back which I don't deserve. I put the cherub to bed in frustration yesterday - amazingly she was better behaved after a two hour sleep. I'm sure her heart problem relates to her tiredness and inability to cope. Intellectually, she is about a 3 yo which I sometimes forget. I think this is exacerbated by her normal environment. If she doesn't do what she's told, no one has bothered to train her to do so - so it's a mexican stand off.She just digs her heels in and refuses, head down, turned away, grizzle. So, what do I do? I try to stand her up and project her towards the bathroom, she's a dead weight. Get the picture? </p><p>We do continue to make progress. She does put her dirty undies into a bucket to soak, whch I keep in the bathroom under the sink. We have wet ones for during the day, to wipe the excretement away from legs etc. Saves showering all the time. She uses about a roll of paper a day! I know her mother has tried to make her wash her own dirty clothes, but I won't do that. She just doesn't understand what is happening to her, apart from being fed up of everyone focussing on her bathroom needs! She is sick of that. Sick of us saying, off to the bathroom, I think you're wet/dirty/ need the bathroom.... every 30 minutes or so. But how do we overcome this? </p><p>I wish I had some answers... what does the future hold for her? Educationally she is about a prep level. Mum thinks she is 'up with her peers' but I doubt she understsands what that means... how can she, when she herself is intellectually impaired... it's generation after generation... my heart bleeds to think that this child is going to be another statistic...</p></blockquote><p></p>
[QUOTE="therese005us, post: 275669, member: 7416"] Hi everyone I haven't had much time to check in here to see if anyone wrote back. We've had a busy week. We had flooding rains and so this little cherub has been home for a few days from school. I've been more than a little worn out and frustrated. I don't think I'm doing too well at the moment in the patience department, so don't give me pats on the back which I don't deserve. I put the cherub to bed in frustration yesterday - amazingly she was better behaved after a two hour sleep. I'm sure her heart problem relates to her tiredness and inability to cope. Intellectually, she is about a 3 yo which I sometimes forget. I think this is exacerbated by her normal environment. If she doesn't do what she's told, no one has bothered to train her to do so - so it's a mexican stand off.She just digs her heels in and refuses, head down, turned away, grizzle. So, what do I do? I try to stand her up and project her towards the bathroom, she's a dead weight. Get the picture? We do continue to make progress. She does put her dirty undies into a bucket to soak, whch I keep in the bathroom under the sink. We have wet ones for during the day, to wipe the excretement away from legs etc. Saves showering all the time. She uses about a roll of paper a day! I know her mother has tried to make her wash her own dirty clothes, but I won't do that. She just doesn't understand what is happening to her, apart from being fed up of everyone focussing on her bathroom needs! She is sick of that. Sick of us saying, off to the bathroom, I think you're wet/dirty/ need the bathroom.... every 30 minutes or so. But how do we overcome this? I wish I had some answers... what does the future hold for her? Educationally she is about a prep level. Mum thinks she is 'up with her peers' but I doubt she understsands what that means... how can she, when she herself is intellectually impaired... it's generation after generation... my heart bleeds to think that this child is going to be another statistic... [/QUOTE]
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