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HELP for jess, PLEASE!
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<blockquote data-quote="susiestar" data-source="post: 214777" data-attributes="member: 1233"><p>Jess is a bit better today. She is trying to move around more, and she is stretching to help loosen things up. Since she was better today we haven't headed to the ER, mostly because our ER is SO BAD. Most all we would get would be chart notes that she had muscle spasms. </p><p> </p><p>and benadryl.</p><p> </p><p>Cause they truly think that fixes EVERYTHING - I am so not joking. (I just got the records of when I had the seizure and that was the first think they gave me. There is NO reason why they would give a patient in that state benadryl. It was clearly not an allergic reaction., but anyway, I ahve NO faith in them.)</p><p> </p><p>If she gets bad again I will page the neuro and if needed head into the city 1 1/2 hours away and go to an ER there. Just because our ER won't help at all.</p><p> </p><p>The pediatrician said flat out they won't do anything for her. They did strongly suggest I take her to a therapist. NOT a physical or occupational therapist, but a social worker or psychologist type therapist.</p><p> </p><p>she has one. We like her. But she can't do ANYTHING with muscle spasms. She was mystified that anyone would suggest it.</p><p> </p><p>Jess is wanting fruit and veggies, and we are letting her eat what she wants of htem. She is also drinking a LOT of water, so if any lactic acid is released from the spasmed muscles it won't make things worse.</p><p> </p><p>I am sticking with fruit and veggies, and not giving her magnesium or anything. They can mess with the epilepsy, well, some supplements can. I don't know which ones, so I will wait for hte neuro.</p><p> </p><p>Thank you all. I really appreciate you. and I am NOT ignoring your advice about the ER. I am just hoping to get someone who will give us answers, and our ER isn't that. (Plus I am having some flu bug again, or an IBS flare, and can't get too far from the bathroom.)</p><p> </p><p>Hugs to ALL of you!</p></blockquote><p></p>
[QUOTE="susiestar, post: 214777, member: 1233"] Jess is a bit better today. She is trying to move around more, and she is stretching to help loosen things up. Since she was better today we haven't headed to the ER, mostly because our ER is SO BAD. Most all we would get would be chart notes that she had muscle spasms. and benadryl. Cause they truly think that fixes EVERYTHING - I am so not joking. (I just got the records of when I had the seizure and that was the first think they gave me. There is NO reason why they would give a patient in that state benadryl. It was clearly not an allergic reaction., but anyway, I ahve NO faith in them.) If she gets bad again I will page the neuro and if needed head into the city 1 1/2 hours away and go to an ER there. Just because our ER won't help at all. The pediatrician said flat out they won't do anything for her. They did strongly suggest I take her to a therapist. NOT a physical or occupational therapist, but a social worker or psychologist type therapist. she has one. We like her. But she can't do ANYTHING with muscle spasms. She was mystified that anyone would suggest it. Jess is wanting fruit and veggies, and we are letting her eat what she wants of htem. She is also drinking a LOT of water, so if any lactic acid is released from the spasmed muscles it won't make things worse. I am sticking with fruit and veggies, and not giving her magnesium or anything. They can mess with the epilepsy, well, some supplements can. I don't know which ones, so I will wait for hte neuro. Thank you all. I really appreciate you. and I am NOT ignoring your advice about the ER. I am just hoping to get someone who will give us answers, and our ER isn't that. (Plus I am having some flu bug again, or an IBS flare, and can't get too far from the bathroom.) Hugs to ALL of you! [/QUOTE]
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