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<blockquote data-quote="Marguerite" data-source="post: 340076" data-attributes="member: 1991"><p>Good to hear form you, glad things are gonig well for you.</p><p></p><p>A suggestion for your neighbour, for now - the boy desperately needs help to communicate, and if words are currently a problem, then she should try compics, or some other alternative. He needs something he can use to help him communicate, then his rages might ease off a bit.</p><p></p><p>I understand her desperately trying to find reasons she can grasp (like straws) to blame things like his rages on, but you should never underestimate just how frustrated kids can get, especially bright kids who can't make people understand them, or who can't understand other people.</p><p></p><p>If it's any consolation, difficult child 3 was this bad and worse. And he's doing great now. He "failed" his first IQ test, we were told he was retarded and would never be able to function normally, would never be able to learn much, would always need a high level of care. But this year he's still worknig towards completing high school (at an age-equivalent level) but also being accelerated into a college course.</p><p></p><p>WHat worked for us - stimulation. Communication. Support and encouragement, working with the child where he is, and moving from there towards where we wanted him to be. Slowly, and only as much as he could handle it. We've used computers a lot. Anything he was intereted in, we gave him more of it. For example, we realised he had a musical talent plus an obsession with numbers and letters, so we showed him how to read music. Because he loved alphabet, we taught him how to play the alphabet song on the piano (which is really "Twinkle Twinkle Little Star") and wrote out the sheet music for him. It was like a Rosetta Stone for him, and from there he began to communicate - first with compics (briefly) and then with the written word (on little cards like compics) and then (slowly) single words.</p><p></p><p>It was an ongoing process where we had to keep developing things a little more, as he made progress. We did this without therapist support, we sort of worked it out ourselves in the absence of any decent support available.</p><p></p><p>Of course, if you can get professional help, then use it. We couldn't, but still were able to help difficult child 3 make amazing progress, from that first very negative prognosis (he was 4 when we were told that he was always gonig to need a high level of care and would never learn).</p><p></p><p>It's good to hear from you. We need success stories!</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 340076, member: 1991"] Good to hear form you, glad things are gonig well for you. A suggestion for your neighbour, for now - the boy desperately needs help to communicate, and if words are currently a problem, then she should try compics, or some other alternative. He needs something he can use to help him communicate, then his rages might ease off a bit. I understand her desperately trying to find reasons she can grasp (like straws) to blame things like his rages on, but you should never underestimate just how frustrated kids can get, especially bright kids who can't make people understand them, or who can't understand other people. If it's any consolation, difficult child 3 was this bad and worse. And he's doing great now. He "failed" his first IQ test, we were told he was retarded and would never be able to function normally, would never be able to learn much, would always need a high level of care. But this year he's still worknig towards completing high school (at an age-equivalent level) but also being accelerated into a college course. WHat worked for us - stimulation. Communication. Support and encouragement, working with the child where he is, and moving from there towards where we wanted him to be. Slowly, and only as much as he could handle it. We've used computers a lot. Anything he was intereted in, we gave him more of it. For example, we realised he had a musical talent plus an obsession with numbers and letters, so we showed him how to read music. Because he loved alphabet, we taught him how to play the alphabet song on the piano (which is really "Twinkle Twinkle Little Star") and wrote out the sheet music for him. It was like a Rosetta Stone for him, and from there he began to communicate - first with compics (briefly) and then with the written word (on little cards like compics) and then (slowly) single words. It was an ongoing process where we had to keep developing things a little more, as he made progress. We did this without therapist support, we sort of worked it out ourselves in the absence of any decent support available. Of course, if you can get professional help, then use it. We couldn't, but still were able to help difficult child 3 make amazing progress, from that first very negative prognosis (he was 4 when we were told that he was always gonig to need a high level of care and would never learn). It's good to hear from you. We need success stories! Marg [/QUOTE]
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