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Hi I am new to the site and need some advice
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<blockquote data-quote="SRL" data-source="post: 233354" data-attributes="member: 701"><p>Hi ivas611 and welcome to our forum. I read through your post and heaved a big sigh because I know there are going to be plenty of parents here who can relate to what you're going through. Nothing is harder than seeing a child not be able to function in their world.</p><p></p><p>The two specialists we typically recommend (in addition to speech and Occupational Therapist (OT)) to parents with young children are developmentaland behavioral pediatricians and pediatric neuropsychologists, neither of which I see on your list. Not that any specialty has the corner on accurate diagnoses, but these two tend to generally strike closer to the mark. Developmental peds take a widespread medical approach and the pediatric neuropsychologists do a lot of testing.</p><p></p><p>We are only parents here--definitely not diagnosticians--but what went through my head in reading your description was Asperger's Syndrome, which is the highest functioning form of the Autistic Spectrum Disorders. It gets missed or misdiagnosed very frequently by medical people when children are younger, because the kids are very articulate (unlike the rest of the Autism Spectrum Disorders (ASD)'s in which the kids show early speech delays). Kids with Asperger's Syndrome have "Little Professor" tendencies but also have a variety of other issues such as socialization, obsessions, sensory issues, anxiety/transition problems, etc. Did anyone bring up this possibility with you?</p><p>Here's a link about AS:</p><p><a href="http://www.aspergersyndrome.org/" target="_blank">http://www.aspergersyndrome.org/</a></p><p></p><p>If this rings a bell at all (even if it doesn't fit completely) I'd suggest further evaluation.</p><p></p><p>Most of us recommend the book "The Explosive Child" by Ross Greene to give some parenting strategies. It sounds like your little guy needs soma major stabilization so lay low on everything but safety right now and be sure and check out the thread at the top of this board on the book. This will be a very different approach to parenting than any you've ever been exposed to before, but when nothing else is working, sometimes the best thing to do is toss out everything but loving the kid and keeping them safe in order to help them to a place where they can function with more "normal" parenting.</p><p></p><p>As for sleep, you might want to check into a natural product called Melatonin that many parents here have found helpful without side effects. You also may want to get a book called The Out of Sync Child by Carol Kranowitz to read up on sensory issues. I found weighted blankets and a mummy sleeping bag to be helpful for sleep with my kids.</p><p></p><p>Hang in there and lay low on discipline for now because it's likely he really can't help what's going on. I know it's exhausting.</p></blockquote><p></p>
[QUOTE="SRL, post: 233354, member: 701"] Hi ivas611 and welcome to our forum. I read through your post and heaved a big sigh because I know there are going to be plenty of parents here who can relate to what you're going through. Nothing is harder than seeing a child not be able to function in their world. The two specialists we typically recommend (in addition to speech and Occupational Therapist (OT)) to parents with young children are developmentaland behavioral pediatricians and pediatric neuropsychologists, neither of which I see on your list. Not that any specialty has the corner on accurate diagnoses, but these two tend to generally strike closer to the mark. Developmental peds take a widespread medical approach and the pediatric neuropsychologists do a lot of testing. We are only parents here--definitely not diagnosticians--but what went through my head in reading your description was Asperger's Syndrome, which is the highest functioning form of the Autistic Spectrum Disorders. It gets missed or misdiagnosed very frequently by medical people when children are younger, because the kids are very articulate (unlike the rest of the Autism Spectrum Disorders (ASD)'s in which the kids show early speech delays). Kids with Asperger's Syndrome have "Little Professor" tendencies but also have a variety of other issues such as socialization, obsessions, sensory issues, anxiety/transition problems, etc. Did anyone bring up this possibility with you? Here's a link about AS: [URL]http://www.aspergersyndrome.org/[/URL] If this rings a bell at all (even if it doesn't fit completely) I'd suggest further evaluation. Most of us recommend the book "The Explosive Child" by Ross Greene to give some parenting strategies. It sounds like your little guy needs soma major stabilization so lay low on everything but safety right now and be sure and check out the thread at the top of this board on the book. This will be a very different approach to parenting than any you've ever been exposed to before, but when nothing else is working, sometimes the best thing to do is toss out everything but loving the kid and keeping them safe in order to help them to a place where they can function with more "normal" parenting. As for sleep, you might want to check into a natural product called Melatonin that many parents here have found helpful without side effects. You also may want to get a book called The Out of Sync Child by Carol Kranowitz to read up on sensory issues. I found weighted blankets and a mummy sleeping bag to be helpful for sleep with my kids. Hang in there and lay low on discipline for now because it's likely he really can't help what's going on. I know it's exhausting. [/QUOTE]
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