all kids react differently..... difficult child has been fixated on tube since day one. it took us 4 nurses husband and i to hold her down while she bit cut me hit screamed kicked to get it in. most traumatic thing i think i've ever been through lol. doctor's thought she'd stop fixating on it by day 3 as most kids do yet surprisingly difficult child has not
shocker!! we'll see how she does on 7.5 i never went that high at home.
this morning she told the doctor on rounds i am not ready to eat and it's going to be a long time till i am. doctor told me it's one of those things that is so incredibly hard to treat yet once the stars are all aligned it's treatable 100% with zero relapse. so we'll see how long our stars take to align themselves.
i was hoping to head home in 3 to 4 weeks check on easy child for like 3 days. we found a cheap flight. yet doctor and i spoke and they said ex h has been caling both the hospital and the clinic each day hounding them. they amazingly handled him didnt tell me a thing so as not to upset me. they told him we'll call you each day and give you her medical update. i said wow you didnt' even tell me that's amazing. she said no you have enough going on right now.
so, doctor and i both agreed having dad come to see her so i can go home for a bit wouldnt' be the right choice. he may trigger her anxiety with his craziness the whole your hospital bed may go on fire etc. if you do this that or the other thing. also we run the risk of her shutting down because i leave. it's not like we're going to get another shot at this it's now or never. so i'm here for the duration sadly enough.
i'm slowly adjusting. i have therapy for me on monday, than wednesday night i'm leaving difficult child for a bit and taking a theraputic healing yoga class for my swollen body. and i am going to church once a week here at the hospital. its been hard because therapy for her hasn't started yet and it's so important because without that piece food wont' come so all her venting is on me still.