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How Do I Help Jess?
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<blockquote data-quote="Josie" data-source="post: 390949" data-attributes="member: 1792"><p>I am sorry this doesn't seem to be working out. It is a shock to go to the hospital and find there is no help there. I hope you are wrong and they do come up with something helpful today.</p><p></p><p>Was it during this hospital stay that they had her look in the mirror and tell herself she wouldn't shake?</p><p></p><p>Until you have experienced it, it is hard to believe that doctors can be so uncaring and arrogant. To me it is arrogant to think something is all in a patient's head if their symptoms don't fall neatly into one of the checklists of symptoms. With the looking in the mirror and talking to herself, it sounds like they are on that path. </p><p></p><p>I think it is best that you don't leave her alone with them anyway. Who knows what they might do or say to her if you weren't there?</p><p></p><p>While you are there, I would ask the nurses to make sure to note in her chart that she is so pale, if you can. My daughter had muscle twitches that you could see through the blankets that a nurse saw. However, there is no note of this in the chart, just that "parent reports muscle twitches" that were not detected on the EEG video. I'm not sure if this will matter in the end, but it is documentation that someone else saw it, if you can get it.</p><p></p><p>I am still hoping they will come through with something helpful before you leave.</p></blockquote><p></p>
[QUOTE="Josie, post: 390949, member: 1792"] I am sorry this doesn't seem to be working out. It is a shock to go to the hospital and find there is no help there. I hope you are wrong and they do come up with something helpful today. Was it during this hospital stay that they had her look in the mirror and tell herself she wouldn't shake? Until you have experienced it, it is hard to believe that doctors can be so uncaring and arrogant. To me it is arrogant to think something is all in a patient's head if their symptoms don't fall neatly into one of the checklists of symptoms. With the looking in the mirror and talking to herself, it sounds like they are on that path. I think it is best that you don't leave her alone with them anyway. Who knows what they might do or say to her if you weren't there? While you are there, I would ask the nurses to make sure to note in her chart that she is so pale, if you can. My daughter had muscle twitches that you could see through the blankets that a nurse saw. However, there is no note of this in the chart, just that "parent reports muscle twitches" that were not detected on the EEG video. I'm not sure if this will matter in the end, but it is documentation that someone else saw it, if you can get it. I am still hoping they will come through with something helpful before you leave. [/QUOTE]
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