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The Watercooler
How Do I Keep Us, and Jess, Safe?
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<blockquote data-quote="nerfherder" data-source="post: 594424" data-attributes="member: 15907"><p>OK, I chatted with my friend Carol, and here's what she had to say: </p><p></p><p>"NORD may be a resource: <a href="http://www.rarediseases.org" target="_blank">http://www.rarediseases.org</a> The test in question is for anti-Generalized Anxiety Disorder (GAD) antibodies. Positive for antibodies points to a group of about 8 syndromes, then you narrow it down by those symptoms. Perhaps pointing out that the test could rule out some things would help."</p><p></p><p>So you have a _specific_ test to ask for, not some weird sample by some flake working out of a strip mall. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> You could perhaps get on line with the organization's website listed above, and find someone who would administer the test - it might not even require visiting a local doctor; when we had Kiddo tested prior to enrolling in Dr. Cade's autism study (back in '98 or '99 or so) all we needed were the orders from him (in Florida!), mailed to us, and we took them to the local draw lab for the blood draw - and they mailed them off to the appropriate testing lab. We paid out of pocket for the test, and this being an uncommon one I can't say how much you're likely to pay - it may not be cheap. </p><p></p><p>My friend is interested in how this comes out for you, let us know - is it ok if I pass along how things go?</p><p></p><p>She pointed out that a lot of people with SPS end up in wheelchairs before a diagnosis because of the same problems you're having. She says they were lucky that they had a specialist relatively nearby.</p></blockquote><p></p>
[QUOTE="nerfherder, post: 594424, member: 15907"] OK, I chatted with my friend Carol, and here's what she had to say: "NORD may be a resource: [url]http://www.rarediseases.org[/url] The test in question is for anti-Generalized Anxiety Disorder (GAD) antibodies. Positive for antibodies points to a group of about 8 syndromes, then you narrow it down by those symptoms. Perhaps pointing out that the test could rule out some things would help." So you have a _specific_ test to ask for, not some weird sample by some flake working out of a strip mall. :) You could perhaps get on line with the organization's website listed above, and find someone who would administer the test - it might not even require visiting a local doctor; when we had Kiddo tested prior to enrolling in Dr. Cade's autism study (back in '98 or '99 or so) all we needed were the orders from him (in Florida!), mailed to us, and we took them to the local draw lab for the blood draw - and they mailed them off to the appropriate testing lab. We paid out of pocket for the test, and this being an uncommon one I can't say how much you're likely to pay - it may not be cheap. My friend is interested in how this comes out for you, let us know - is it ok if I pass along how things go? She pointed out that a lot of people with SPS end up in wheelchairs before a diagnosis because of the same problems you're having. She says they were lucky that they had a specialist relatively nearby. [/QUOTE]
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