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How does everyone cope??
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<blockquote data-quote="cfa3" data-source="post: 306234" data-attributes="member: 6817"><p>Christy:</p><p> </p><p>Very excellent advice! I have been doing a lot of just focusing on the "now", the good things about today, the positive things about my son. He has a very strict early bed time exactly so that we dont go crazy and we have a few hours to ourselves. Sometimes it amazes that I feel that the world doesnt know about us, doesnt know about the battle we have in our homes, the work we do, the fight we fight. Thank you so much for replying to me.</p><p> </p><p>Pepperidge: Yes we have tried Abilify and for a few months it workedgreat, even lessened the tics, but all of a sudden one day my son became almost suicidal, and we were all very scared and removed him from the medication. and slowly he recovered. I have been scared to try anything like that since, but now we are considering perhaps Risperdal. We took him off the Stratterra a few days ago. We have another medications appointment next week and currently have an Rx for Concerta though I am scared to try a stimulant again, but I figure we wont know if we dont try. Thank you for taking the time to reply to me!</p><p> </p><p>Margeurite: Wow, I think you could publish that and sell it! Your advice reads like an excellent how to manual that everyone should read! What you say is so true! I actually believe it or not 100&#37; agree that I am incharge of all this and that I am the expert here, and interestingly enough I have never reallyu relied on the doctors, their opinions or there medicines. Only now am I focusing more on that because things have gotten to the out of control stage with my son (the violence) and so I need, if there exists, the right medications, and some training on handling this, but otherwise I have never really felt like there is one doctor "savior" out there, etc. No one knows my son better than me, and so no one even with their expert knowledge, is going to know better than I. Of course I dont knwo abotu medications, I dont know about various behavior techniques or skills training techniques etc, and so I need doctors, but I do not feel like I will find one that will put the rainbow in the sky for us. You are so right. As for the ongoing therapy, yes, we do have that kind of life. My husband and I knwo what to do and not to do (for the most part of course), what discipline techniques are right for him, what to expect and not to expect from him, what areas to push him in, what areas to teach him in, etc etc etc. Absolutely. Treating him like a normal child would be very harmful for him. We are far from perfect and we get frustrated with him, exasperated, sometimes shout, etc, but overall we do know who he is. We do speech stuff at home, learn skills at home, have goals, have rules, have little ways of incorporating constant teaching throughout the day. The homeschool thing may not last through the years as he enjoys being out around others etc, but for now it is good so he can learn some basic school skills he missed at the god awful public schools here. Anyhow, not to ramble, but thank you so much! I appreciate you taking all the time to impart your info to me! And I feel the same way with running into a brick wall and not seeing any other direction, and thats where this forum has been incredible, showing and reminding me that there is also left and right, not just that wall in front of me. sometimes all it takes to keep going on is a little reminder that youre not at a dead end though it FEELS that way at times. This is the reminder you all have given me in replying. Thank you so much. The info is invaluable. </p><p> </p><p>Nomad: I agree with what you have said, my husband and I do things like just go the grocery together alone or out to dinner once a month, jsut to feel human and sane again. thank you for the coping tips. I print out all of your responses so I can refresh myself when I need it. Thank you for replying to me!</p><p> </p><p><img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p></blockquote><p></p>
[QUOTE="cfa3, post: 306234, member: 6817"] Christy: Very excellent advice! I have been doing a lot of just focusing on the "now", the good things about today, the positive things about my son. He has a very strict early bed time exactly so that we dont go crazy and we have a few hours to ourselves. Sometimes it amazes that I feel that the world doesnt know about us, doesnt know about the battle we have in our homes, the work we do, the fight we fight. Thank you so much for replying to me. Pepperidge: Yes we have tried Abilify and for a few months it workedgreat, even lessened the tics, but all of a sudden one day my son became almost suicidal, and we were all very scared and removed him from the medication. and slowly he recovered. I have been scared to try anything like that since, but now we are considering perhaps Risperdal. We took him off the Stratterra a few days ago. We have another medications appointment next week and currently have an Rx for Concerta though I am scared to try a stimulant again, but I figure we wont know if we dont try. Thank you for taking the time to reply to me! Margeurite: Wow, I think you could publish that and sell it! Your advice reads like an excellent how to manual that everyone should read! What you say is so true! I actually believe it or not 100% agree that I am incharge of all this and that I am the expert here, and interestingly enough I have never reallyu relied on the doctors, their opinions or there medicines. Only now am I focusing more on that because things have gotten to the out of control stage with my son (the violence) and so I need, if there exists, the right medications, and some training on handling this, but otherwise I have never really felt like there is one doctor "savior" out there, etc. No one knows my son better than me, and so no one even with their expert knowledge, is going to know better than I. Of course I dont knwo abotu medications, I dont know about various behavior techniques or skills training techniques etc, and so I need doctors, but I do not feel like I will find one that will put the rainbow in the sky for us. You are so right. As for the ongoing therapy, yes, we do have that kind of life. My husband and I knwo what to do and not to do (for the most part of course), what discipline techniques are right for him, what to expect and not to expect from him, what areas to push him in, what areas to teach him in, etc etc etc. Absolutely. Treating him like a normal child would be very harmful for him. We are far from perfect and we get frustrated with him, exasperated, sometimes shout, etc, but overall we do know who he is. We do speech stuff at home, learn skills at home, have goals, have rules, have little ways of incorporating constant teaching throughout the day. The homeschool thing may not last through the years as he enjoys being out around others etc, but for now it is good so he can learn some basic school skills he missed at the god awful public schools here. Anyhow, not to ramble, but thank you so much! I appreciate you taking all the time to impart your info to me! And I feel the same way with running into a brick wall and not seeing any other direction, and thats where this forum has been incredible, showing and reminding me that there is also left and right, not just that wall in front of me. sometimes all it takes to keep going on is a little reminder that youre not at a dead end though it FEELS that way at times. This is the reminder you all have given me in replying. Thank you so much. The info is invaluable. Nomad: I agree with what you have said, my husband and I do things like just go the grocery together alone or out to dinner once a month, jsut to feel human and sane again. thank you for the coping tips. I print out all of your responses so I can refresh myself when I need it. Thank you for replying to me! :) [/QUOTE]
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