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HOW in the WORLD does this make sense?
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<blockquote data-quote="susiestar" data-source="post: 459221" data-attributes="member: 1233"><p>Mayo has already said they won't do anything more than has been done. That was a month ago. Maybe the sudden falling would make them move, but having her body freeze in one position for ten min to an hour at a time where she is alert and if she fights can blink her eyes to answer yes or no questions but it clearly is a struggle, at least to me - she has maybe fifteen to twenty seconds where seh gets super hot first and then she freezes like a kid playing freeze tag - and this has happened while bent over to fill the cat's bowl, on the toilet, watching tv, running the vacuum, taking a shower, etc.... that didn't make any of them think that she needed help or to be seen so I just don't know if this will convince anyone but us yet again.</p><p></p><p>She can't go to school. No way. they won't even register her because the medical issues. I tried to get her enrolled because she really was determined to try it and get an IEP to make it work when she couldn't go to school. they saw the doctor info and said that it was too much of a liability issue and since we had homeschooled her we could just continue that and she could go to college with a GED. I don't know HOW they can refuse to register someone, but I can't fight that battle and the health stuff too. She is so motivated to learn, so curious, that her education is ahead of schedule on most things but writing essays. Even with typing quite well she just cannot handle long assignments. Include taht she is on NO antiseizure medications because an EEG while on lamictal showed no seizures, and she is blanking out witha bsence seizures a LOT. I notice them, but I pay attention to her. I can tell when she is ignoring me because she doesn't want to do something and because she honestly has no idea she was told to do it or that we discussed it. It just makes me disgusted with the docs here.</p><p></p><p>I just know I can either use the energy I have to fight for her health or to get her to attend school, I can't handle both right now and her education is fine. We NEED that outside party to see the problems, but even when the nurses at the Dallas hospital noticed things and charted them the docs said they didn't happen. </p><p></p><p>thanks ladies. I really needed to vent on this. the pm is much appreciated and I will check into that, thanks 'Stang!</p></blockquote><p></p>
[QUOTE="susiestar, post: 459221, member: 1233"] Mayo has already said they won't do anything more than has been done. That was a month ago. Maybe the sudden falling would make them move, but having her body freeze in one position for ten min to an hour at a time where she is alert and if she fights can blink her eyes to answer yes or no questions but it clearly is a struggle, at least to me - she has maybe fifteen to twenty seconds where seh gets super hot first and then she freezes like a kid playing freeze tag - and this has happened while bent over to fill the cat's bowl, on the toilet, watching tv, running the vacuum, taking a shower, etc.... that didn't make any of them think that she needed help or to be seen so I just don't know if this will convince anyone but us yet again. She can't go to school. No way. they won't even register her because the medical issues. I tried to get her enrolled because she really was determined to try it and get an IEP to make it work when she couldn't go to school. they saw the doctor info and said that it was too much of a liability issue and since we had homeschooled her we could just continue that and she could go to college with a GED. I don't know HOW they can refuse to register someone, but I can't fight that battle and the health stuff too. She is so motivated to learn, so curious, that her education is ahead of schedule on most things but writing essays. Even with typing quite well she just cannot handle long assignments. Include taht she is on NO antiseizure medications because an EEG while on lamictal showed no seizures, and she is blanking out witha bsence seizures a LOT. I notice them, but I pay attention to her. I can tell when she is ignoring me because she doesn't want to do something and because she honestly has no idea she was told to do it or that we discussed it. It just makes me disgusted with the docs here. I just know I can either use the energy I have to fight for her health or to get her to attend school, I can't handle both right now and her education is fine. We NEED that outside party to see the problems, but even when the nurses at the Dallas hospital noticed things and charted them the docs said they didn't happen. thanks ladies. I really needed to vent on this. the pm is much appreciated and I will check into that, thanks 'Stang! [/QUOTE]
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