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<blockquote data-quote="Marguerite" data-source="post: 456462" data-attributes="member: 1991"><p>Hugs, Lisa. Let the nurses keep you informed. I know it's frustrating, but if the doctor is too busy to talk, hopefully it means he's actually doctoring and not PR-ing. What if you ask the nurse to ask the doctor to make time to talk to you? You want to get the info from the horse's mouth, as it were. We had the same problem with doctors when mother in law was in hospital - we would be told, "She can go home tomorrow morning, after she sees the doctor," but the doctor might not make his rounds until the afternoon as a routine. Or mother in law would tell the nursing staff she was going home in the morning after the doctor came, only for us to find out that this was blatantly untrue, it was merely wishful thinking (mother in law is ex-nurse and a horrible patient).</p><p></p><p>My mother had congestive heart failure for years. It was tricky trying to manage it at times. I was 15 when she first began to have problems with her heart. I was 40 when she died, and that was not primarily her heart. She chose to take herself off her heart medications following mismanagement of a stroke, but she was almost 90 by then and doing one last act of personal control by choosing how and when she could die.</p><p></p><p>Your husband's low BiPolar (BP) is probably the main reason for poor renal function; if diastolic pressure is too low, kidneys don't perfuse properly (or at all) and toxins build up. This won't be helping him feel any good at all, kidney toxins make you feel really lousy. The heart muscle damage really doesn't sound good. You said the first hospital were amazing when you took him there, it sounded to me like he got treatment a lot faster than a lot of other people would under those circumstances and with those symptoms. So if that damage is there despite the early action, then I don't see how anything you did could have greatly reduced the degree of problems now. It does sound like this was the heart attack waiting to happen, big time.</p><p></p><p>There are things they can do for now, conservative things, while they see how he goes with management and his own attitude to getting well. If it looks like their efforts will pay off, they may choose to do more once he picks up a bit. Fluid drainage, short-term dialysis (you are not necessarily stuck on it for life, I don't think I need to tell you that though). With his history, he's probably not a good candidate for surgery though. But who knows? </p><p></p><p>How are his BSLs? Elevated BSL could also cause complications especially with circulation and healing.</p><p></p><p>If he can accept no more smoking, and if the doctors can manage his problems short-term, the main longer-term problem is that heart damage. And depending on whether the damage also involves the cardiac contractile muscle or just neurological damage will also determine what his chances are down the track. </p><p></p><p>What about you? Are you getting enough sleep? Have you got something to do with your hands? I've found it is the best way to keep my stress under control at such times. I took up knitting again during my breast cancer diagnosis and treatment, there were times when it felt it was all I could do, and the repetitive physical activity helped me stay calmer, I think. I use circular needles because you can put it down in an instant if you need to, to see doctors etc. Or crochet, which can always be put down with only one stitch hanging on the hook. Anything. I find my brain goes to mush at times like this and reading old magazines in the waiting room is the worst kind of torture.</p><p></p><p>Be kind to yourself, it is perhaps the best you can do for your husband right now.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 456462, member: 1991"] Hugs, Lisa. Let the nurses keep you informed. I know it's frustrating, but if the doctor is too busy to talk, hopefully it means he's actually doctoring and not PR-ing. What if you ask the nurse to ask the doctor to make time to talk to you? You want to get the info from the horse's mouth, as it were. We had the same problem with doctors when mother in law was in hospital - we would be told, "She can go home tomorrow morning, after she sees the doctor," but the doctor might not make his rounds until the afternoon as a routine. Or mother in law would tell the nursing staff she was going home in the morning after the doctor came, only for us to find out that this was blatantly untrue, it was merely wishful thinking (mother in law is ex-nurse and a horrible patient). My mother had congestive heart failure for years. It was tricky trying to manage it at times. I was 15 when she first began to have problems with her heart. I was 40 when she died, and that was not primarily her heart. She chose to take herself off her heart medications following mismanagement of a stroke, but she was almost 90 by then and doing one last act of personal control by choosing how and when she could die. Your husband's low BiPolar (BP) is probably the main reason for poor renal function; if diastolic pressure is too low, kidneys don't perfuse properly (or at all) and toxins build up. This won't be helping him feel any good at all, kidney toxins make you feel really lousy. The heart muscle damage really doesn't sound good. You said the first hospital were amazing when you took him there, it sounded to me like he got treatment a lot faster than a lot of other people would under those circumstances and with those symptoms. So if that damage is there despite the early action, then I don't see how anything you did could have greatly reduced the degree of problems now. It does sound like this was the heart attack waiting to happen, big time. There are things they can do for now, conservative things, while they see how he goes with management and his own attitude to getting well. If it looks like their efforts will pay off, they may choose to do more once he picks up a bit. Fluid drainage, short-term dialysis (you are not necessarily stuck on it for life, I don't think I need to tell you that though). With his history, he's probably not a good candidate for surgery though. But who knows? How are his BSLs? Elevated BSL could also cause complications especially with circulation and healing. If he can accept no more smoking, and if the doctors can manage his problems short-term, the main longer-term problem is that heart damage. And depending on whether the damage also involves the cardiac contractile muscle or just neurological damage will also determine what his chances are down the track. What about you? Are you getting enough sleep? Have you got something to do with your hands? I've found it is the best way to keep my stress under control at such times. I took up knitting again during my breast cancer diagnosis and treatment, there were times when it felt it was all I could do, and the repetitive physical activity helped me stay calmer, I think. I use circular needles because you can put it down in an instant if you need to, to see doctors etc. Or crochet, which can always be put down with only one stitch hanging on the hook. Anything. I find my brain goes to mush at times like this and reading old magazines in the waiting room is the worst kind of torture. Be kind to yourself, it is perhaps the best you can do for your husband right now. Marg [/QUOTE]
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