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The Watercooler
husband's MRI follow-up today...
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<blockquote data-quote="gcvmom" data-source="post: 300985" data-attributes="member: 3444"><p>Yes, the news is good! There is no change in the little rice-sized cavernoma. The fact that he continues to have these seizures is annoying. The neuro is telling us he doesn't think he wants to try bumping up the Trileptal because it makes husband tired.... but I'm not sure a I agree with that opinion. Yes, it does make him tired, but after this last increase to 900mg bid, the fatigue improved after a week or so. He started naming a few other seizure medications to try, but in the same breath mentioned some fairly negative side-effects that I don't think we want to even mess with (one involved permanent vision loss(!), another has to do with worsening depressive symptoms, which is something husband already struggles with and is why he takes Paxil). And then of course he says that if it becomes a real problem, husband should probably have a second surgery to remove the rest of the hippocampus on that side(!!!) </p><p></p><p>So for now, we're relieved that there are no changes and plan on just leaving things as they are. I'm starting to wonder if husband should maybe look for a different neuro to manage this aspect of his care. I just don't like this guy's view of things. And like I said before, if it comes down to another surgery, we'll go see the guy in Phoenix first before doing anything else.</p></blockquote><p></p>
[QUOTE="gcvmom, post: 300985, member: 3444"] Yes, the news is good! There is no change in the little rice-sized cavernoma. The fact that he continues to have these seizures is annoying. The neuro is telling us he doesn't think he wants to try bumping up the Trileptal because it makes husband tired.... but I'm not sure a I agree with that opinion. Yes, it does make him tired, but after this last increase to 900mg bid, the fatigue improved after a week or so. He started naming a few other seizure medications to try, but in the same breath mentioned some fairly negative side-effects that I don't think we want to even mess with (one involved permanent vision loss(!), another has to do with worsening depressive symptoms, which is something husband already struggles with and is why he takes Paxil). And then of course he says that if it becomes a real problem, husband should probably have a second surgery to remove the rest of the hippocampus on that side(!!!) So for now, we're relieved that there are no changes and plan on just leaving things as they are. I'm starting to wonder if husband should maybe look for a different neuro to manage this aspect of his care. I just don't like this guy's view of things. And like I said before, if it comes down to another surgery, we'll go see the guy in Phoenix first before doing anything else. [/QUOTE]
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husband's MRI follow-up today...
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