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The Watercooler
husband's MRI follow-up today...
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<blockquote data-quote="susiestar" data-source="post: 301241" data-attributes="member: 1233"><p>I am not sure about the other medications but I CAN speak about Keppra. Jess is NOT unusually sensitive to medications. It took 11 MONTHS to titrate up to a therapeutic level of Keppra. She was 100&#37; unable to attend school because she was missing over half of each lesson due to absence seizures. The biggest problem at first was she felt like she had a horrible cold - for almost 2 MONTHS. It also caused other problems.</p><p></p><p>I have been on it for almost 2 months, and am NOWHERE close to a therapeutic level. I have felt sick, had a constantly upset stomach, and have an incredibly hard time communicating. Choosing the right words is TORTURE for me. Each post that I send here is carefully typed and then edited several times. You would totally NOT understand the first draft. I spoke to the nurse and she said that they want me to give it a couple more weeks. I have not been able to increase the dose from the starting dose, so coming off of it shouldn't be too bad.</p><p></p><p>Lyrica is great for me. I take it for nerve pain in my hands and feet. I started it 4 years ago and it has been great. Few side effects and it controls my migraines better than topomax ever did.</p><p></p><p>I urge you to get an appointment with a doctor who will change his medications. NO ONE should be scalpel happy in your brain. Just leaving things as is unless he wants surgery is just NOT okay. There are a LOT of medications that help seizures. </p><p></p><p>EVERY medication, even aspirin and tylenol, has side effects. Listen to one of the drug commercials on tv. Does that list sound like anything anyone would take? EVERY single medicine has a list like that. </p><p></p><p>You just have to weigh the possible benefit against the possible risk. It may be that you want to stick with trileptal, but it should NOT be that that medication is the only alternative to surgery, esp brain surgery.</p><p></p><p>The trileptal side effects were so daunting that we almost did not let thank you trial it. We chose to because he was inpatient at the time and would be closely monitored. For him it had no effect, literally less effect than an M&M. </p><p></p><p>I am so glad that his oma thingy hasn't grown. Now you need to call to see what other neuro you can find!</p></blockquote><p></p>
[QUOTE="susiestar, post: 301241, member: 1233"] I am not sure about the other medications but I CAN speak about Keppra. Jess is NOT unusually sensitive to medications. It took 11 MONTHS to titrate up to a therapeutic level of Keppra. She was 100% unable to attend school because she was missing over half of each lesson due to absence seizures. The biggest problem at first was she felt like she had a horrible cold - for almost 2 MONTHS. It also caused other problems. I have been on it for almost 2 months, and am NOWHERE close to a therapeutic level. I have felt sick, had a constantly upset stomach, and have an incredibly hard time communicating. Choosing the right words is TORTURE for me. Each post that I send here is carefully typed and then edited several times. You would totally NOT understand the first draft. I spoke to the nurse and she said that they want me to give it a couple more weeks. I have not been able to increase the dose from the starting dose, so coming off of it shouldn't be too bad. Lyrica is great for me. I take it for nerve pain in my hands and feet. I started it 4 years ago and it has been great. Few side effects and it controls my migraines better than topomax ever did. I urge you to get an appointment with a doctor who will change his medications. NO ONE should be scalpel happy in your brain. Just leaving things as is unless he wants surgery is just NOT okay. There are a LOT of medications that help seizures. EVERY medication, even aspirin and tylenol, has side effects. Listen to one of the drug commercials on tv. Does that list sound like anything anyone would take? EVERY single medicine has a list like that. You just have to weigh the possible benefit against the possible risk. It may be that you want to stick with trileptal, but it should NOT be that that medication is the only alternative to surgery, esp brain surgery. The trileptal side effects were so daunting that we almost did not let thank you trial it. We chose to because he was inpatient at the time and would be closely monitored. For him it had no effect, literally less effect than an M&M. I am so glad that his oma thingy hasn't grown. Now you need to call to see what other neuro you can find! [/QUOTE]
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husband's MRI follow-up today...
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