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husband's Seizure Medication Quandary
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<blockquote data-quote="susiestar" data-source="post: 305956" data-attributes="member: 1233"><p>I am torn about studies. I qualify for a lot of them but they always want me to stop all my other medications, even estrogen and thyroid. not happening.</p><p></p><p>The side effect lists are scary, but they are for most drugs, even OTC one.</p><p></p><p>Will the new drug be available to him after the study? or will he take the medication, and then have to find a new one after the study is over, even if the medication helped him a LOT?</p><p></p><p>What if the medication works really really well and when the study ends he has to find a new medication? How will that affect a new job? does he have a LOT of seizures when he is changing medications? </p><p></p><p>Be aware that running drug trials is a very very lucrative job. If the doctor is part of the team running the trial he will get compensated very well if your husband goes into the study. Even if he is NOT part of the docs running the study he will still get compensation if your husband starts the trial, and more if husband finishes it. </p><p></p><p>If your instincts say you need to try other things before this, I think that says a LOT. Personally I think the gut of a Mom/Wife who knows a few things about medications (like all Warrior Moms with difficult child's) is vastly more reliable than a doctor or three.</p></blockquote><p></p>
[QUOTE="susiestar, post: 305956, member: 1233"] I am torn about studies. I qualify for a lot of them but they always want me to stop all my other medications, even estrogen and thyroid. not happening. The side effect lists are scary, but they are for most drugs, even OTC one. Will the new drug be available to him after the study? or will he take the medication, and then have to find a new one after the study is over, even if the medication helped him a LOT? What if the medication works really really well and when the study ends he has to find a new medication? How will that affect a new job? does he have a LOT of seizures when he is changing medications? Be aware that running drug trials is a very very lucrative job. If the doctor is part of the team running the trial he will get compensated very well if your husband goes into the study. Even if he is NOT part of the docs running the study he will still get compensation if your husband starts the trial, and more if husband finishes it. If your instincts say you need to try other things before this, I think that says a LOT. Personally I think the gut of a Mom/Wife who knows a few things about medications (like all Warrior Moms with difficult child's) is vastly more reliable than a doctor or three. [/QUOTE]
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