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The Watercooler
husband's sleep study results are in... (tad long)
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<blockquote data-quote="gcvmom" data-source="post: 242041" data-attributes="member: 3444"><p>ES -- thanks for the encouraging words -- that's what I'm hoping for!</p><p> </p><p>SLSH, he doesn't get his Darth Vader mask until Friday <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink ;)" loading="lazy" data-shortname=";)" /> I'll let you know how our night goes...</p><p> </p><p>WO -- We've pretty much decided to go ahead with difficult child 2. I'm going to try to schedule it for next Friday. We don't need any insurance approvals, thankfully.</p><p> </p><p>RM -- thanks for the link info. I'll check it out!</p><p> </p><p>Steely -- I asked the neuro today if it made sense to give the CPAP time to work and see if that improves his fatigue before taking him off Trileptal and trying something else. He thought that was a good idea. So in one month, if his energy is better, we'll likely increase Trileptal back to where it was, and maybe even higher since he was still having seizures at the 1200mg/day level. Neuro thinks it's just a coincidence that he hasn't had any seizures at the lower level. If Trileptal doesn't work, he's leaning towards Keppra, with the understanding that it might cause mood swings and irritability (!) at which point I told him he'd better consult with the psychiatrist if that starts up! husband had a mini-blow up at me on the way home tonight, and it was once again on his favorite topic (sex). Didn't have near the obsessiveness when he was on a higher Trileptal dose... ugh.</p><p> </p><p>Toto -- I'm wondering if I need one now! I've gained weight and husband says I snore... we'll see. First I have to get everyone else settled and then I can focus on fixing me! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink ;)" loading="lazy" data-shortname=";)" /></p><p> </p><p>DL -- we talked about the other options for addressing the apnea today. The doctor said that for most people, the CPAP is the best way to go because the other solutions don't address all the components involved. One critical part is for husband to lose the weight (and he has a thick neck) which puts all the extra pressure on his throat. When those muscles relax and the tongue falls back, the only real way to keep the airway open is with that air pressure. </p><p></p><p>I'm hoping I can keep my composure when he's wearing it. He's already convinced it's going to ruin what little "romance" we have right now. Poor obsessive guy! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite7" alt=":p" title="Stick Out Tongue :p" loading="lazy" data-shortname=":p" /></p><p> </p><p>Thanks everyone for the feedback and info! I'll let you know how things go this weekend...</p></blockquote><p></p>
[QUOTE="gcvmom, post: 242041, member: 3444"] ES -- thanks for the encouraging words -- that's what I'm hoping for! SLSH, he doesn't get his Darth Vader mask until Friday ;) I'll let you know how our night goes... WO -- We've pretty much decided to go ahead with difficult child 2. I'm going to try to schedule it for next Friday. We don't need any insurance approvals, thankfully. RM -- thanks for the link info. I'll check it out! Steely -- I asked the neuro today if it made sense to give the CPAP time to work and see if that improves his fatigue before taking him off Trileptal and trying something else. He thought that was a good idea. So in one month, if his energy is better, we'll likely increase Trileptal back to where it was, and maybe even higher since he was still having seizures at the 1200mg/day level. Neuro thinks it's just a coincidence that he hasn't had any seizures at the lower level. If Trileptal doesn't work, he's leaning towards Keppra, with the understanding that it might cause mood swings and irritability (!) at which point I told him he'd better consult with the psychiatrist if that starts up! husband had a mini-blow up at me on the way home tonight, and it was once again on his favorite topic (sex). Didn't have near the obsessiveness when he was on a higher Trileptal dose... ugh. Toto -- I'm wondering if I need one now! I've gained weight and husband says I snore... we'll see. First I have to get everyone else settled and then I can focus on fixing me! ;) DL -- we talked about the other options for addressing the apnea today. The doctor said that for most people, the CPAP is the best way to go because the other solutions don't address all the components involved. One critical part is for husband to lose the weight (and he has a thick neck) which puts all the extra pressure on his throat. When those muscles relax and the tongue falls back, the only real way to keep the airway open is with that air pressure. I'm hoping I can keep my composure when he's wearing it. He's already convinced it's going to ruin what little "romance" we have right now. Poor obsessive guy! :P Thanks everyone for the feedback and info! I'll let you know how things go this weekend... [/QUOTE]
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husband's sleep study results are in... (tad long)
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