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I have to learn to keep my shut at doctor's offices.
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<blockquote data-quote="buddy" data-source="post: 567951" data-attributes="member: 12886"><p>Back when I was taking pain medications it was such a miracle because I could work full time on them. But there were times I'd fall asleep sitting up, just couldn't keep my eyes open. I didn't realize until I was off them that it really was the pain medication plus the lexapro. I was shocked at the level of alertness that came back but I never could say while I was on it that it was connected because I functioned really well. The trade off was necessary at the time anyway. </p><p>Problem is you need medications overall right now, but she should have looked planfully at doses and times and asked YOU what schedule changes you could experiment with etc. Just nixing a sleep medication seems thoughtless and lazy and judgemental. </p><p>I can see any doctor not wanting to add another medication to counter symptoms until they knew no other plans would work (this is the first you've reported this symptom, right?). Since you are so young they need to protect you but if you have fibro too, that needs to also be considered. What kinds of dietary changes (not a calorie restricting issue I'm talking about, you know all that......) in terms of pain relief and energy? I literally was able to stop narcotic pain medications and cut any prn pain medications when I stopped all caffeine. A scleroderma support group I went to had many people who suggested that and it worked for several of them. Surprisingly I was able to be more awake without caffeine. </p><p>(too much information moment: HUGE benefit was I had absolutely zero breast pain at pms time no lumps when I stopped caffeine. If I so much as have a hot chocolate even within two weeks, I end up regretting it and remember what I did once I feel that pain.....just happened last month and my pms was like flu with breast pain added....) All that relief just from changing one thing. </p><p>Making huge dietary changes is unrealistic and makes people give up. But maybe one thing every three months? Adding certain foods stopping certain things ....I don't know? Just hoping for one thing to start your spiral up rather than where it's still going. </p><p>And yeah, work hard to find one ongoing doctor....be a pita to them over that issue.</p></blockquote><p></p>
[QUOTE="buddy, post: 567951, member: 12886"] Back when I was taking pain medications it was such a miracle because I could work full time on them. But there were times I'd fall asleep sitting up, just couldn't keep my eyes open. I didn't realize until I was off them that it really was the pain medication plus the lexapro. I was shocked at the level of alertness that came back but I never could say while I was on it that it was connected because I functioned really well. The trade off was necessary at the time anyway. Problem is you need medications overall right now, but she should have looked planfully at doses and times and asked YOU what schedule changes you could experiment with etc. Just nixing a sleep medication seems thoughtless and lazy and judgemental. I can see any doctor not wanting to add another medication to counter symptoms until they knew no other plans would work (this is the first you've reported this symptom, right?). Since you are so young they need to protect you but if you have fibro too, that needs to also be considered. What kinds of dietary changes (not a calorie restricting issue I'm talking about, you know all that......) in terms of pain relief and energy? I literally was able to stop narcotic pain medications and cut any prn pain medications when I stopped all caffeine. A scleroderma support group I went to had many people who suggested that and it worked for several of them. Surprisingly I was able to be more awake without caffeine. (too much information moment: HUGE benefit was I had absolutely zero breast pain at pms time no lumps when I stopped caffeine. If I so much as have a hot chocolate even within two weeks, I end up regretting it and remember what I did once I feel that pain.....just happened last month and my pms was like flu with breast pain added....) All that relief just from changing one thing. Making huge dietary changes is unrealistic and makes people give up. But maybe one thing every three months? Adding certain foods stopping certain things ....I don't know? Just hoping for one thing to start your spiral up rather than where it's still going. And yeah, work hard to find one ongoing doctor....be a pita to them over that issue. [/QUOTE]
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I have to learn to keep my shut at doctor's offices.
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