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I love my son BUT
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<blockquote data-quote="wolonfab" data-source="post: 81373" data-attributes="member: 2797"><p>Marg</p><p>Hmmm its been a hard few mths to be honest so I have been hiding and trying to get by.... I think I need a pysch though cause my head is a mess......</p><p>The therapist took over difficult child after pysch of 6 mths left... they didn't want difficult child to get new pysch cause they said she wouldn't get him... i am not allowed to say what life is like..she asked once and when I went to tell her she told me she is not there for me but only for difficult child and so she doesn't want to hear anything to do with behavior.... I am so glad that i have Burnside cause i was ready to throttle her......she now tells me that she will try and make room for difficult child when she next has time...she has had him for 5 weeks and seen him 1 time..she has hol's and time off and he misses out.......he said to me she musn't like him cause she doesn't see him so i get why he now doesn't want to go on her terms.....</p><p></p><p>difficult child has had respite twice in his life and both times it sucked...I told their team what I thought of their practices and their carers and needless to say they wont have us back on the books...the first woman lasted 3 hours with difficult child and the second lasted 1 night (while I was in hospital giving birth to easy child).....I now am to the point where if he is with me and I get hurt fine but what if he hurts someone else.....could do with a good sleep alone(difficult child wont sleep in his room still)....</p><p></p><p>I called the dept of educ on his current school and dobbed them in for being lazy and hopeless..... well woman called school and they called me... the following wk his teacher went to a seminar on autism.....and said to me wow I thought he was this way to be annoying to me..... she is now trying to understand and isn't making him feel uncomfortable...... they wont give me another IEP though cause the said they have done it and I wasn't needed to be there..... it was requested that it may be a good idea if difficult child goes to a special autism class in a suburb 2 times over...there are only 2 in this whole area and they are not easy to get into...I asked difficult children paed and he said it would be a great help for him......</p><p></p><p>problem with the rules is that he demands everyone else follow them but not him,...he doesn't like being told what to do so he doest listen......I wish the diagnosis and intervention teams were better..have to come up with money to get a occ therapy assess and more tests done and its not easy to find... Burnside said they will try to get us funding cause difficult child needs help now....</p><p></p><p>But even if i had the energy to write the letters i have no idea where to start and to whom to write to....</p><p></p><p></p><p>Beth</p><p>we don't have neuropsychologist here worse luck....the therapist has been having play time for 9 mths now...what she gets from it i am yet to learn...they say he is not pyschotic.....with re medications...we have tried 6 so far and i have left him off them only after he slit his wrist on Ritalin,.....sure they work but so far they haven't worked for him.....</p><p></p><p>Sheila</p><p>i have tried the video camera and he saw it and put on a show... he acted perfect........ i may try the tape recoder again...... cant do anything but try if i can find a little one that i can hide.....</p></blockquote><p></p>
[QUOTE="wolonfab, post: 81373, member: 2797"] Marg Hmmm its been a hard few mths to be honest so I have been hiding and trying to get by.... I think I need a pysch though cause my head is a mess...... The therapist took over difficult child after pysch of 6 mths left... they didn't want difficult child to get new pysch cause they said she wouldn't get him... i am not allowed to say what life is like..she asked once and when I went to tell her she told me she is not there for me but only for difficult child and so she doesn't want to hear anything to do with behavior.... I am so glad that i have Burnside cause i was ready to throttle her......she now tells me that she will try and make room for difficult child when she next has time...she has had him for 5 weeks and seen him 1 time..she has hol's and time off and he misses out.......he said to me she musn't like him cause she doesn't see him so i get why he now doesn't want to go on her terms..... difficult child has had respite twice in his life and both times it sucked...I told their team what I thought of their practices and their carers and needless to say they wont have us back on the books...the first woman lasted 3 hours with difficult child and the second lasted 1 night (while I was in hospital giving birth to easy child).....I now am to the point where if he is with me and I get hurt fine but what if he hurts someone else.....could do with a good sleep alone(difficult child wont sleep in his room still).... I called the dept of educ on his current school and dobbed them in for being lazy and hopeless..... well woman called school and they called me... the following wk his teacher went to a seminar on autism.....and said to me wow I thought he was this way to be annoying to me..... she is now trying to understand and isn't making him feel uncomfortable...... they wont give me another IEP though cause the said they have done it and I wasn't needed to be there..... it was requested that it may be a good idea if difficult child goes to a special autism class in a suburb 2 times over...there are only 2 in this whole area and they are not easy to get into...I asked difficult children paed and he said it would be a great help for him...... problem with the rules is that he demands everyone else follow them but not him,...he doesn't like being told what to do so he doest listen......I wish the diagnosis and intervention teams were better..have to come up with money to get a occ therapy assess and more tests done and its not easy to find... Burnside said they will try to get us funding cause difficult child needs help now.... But even if i had the energy to write the letters i have no idea where to start and to whom to write to.... Beth we don't have neuropsychologist here worse luck....the therapist has been having play time for 9 mths now...what she gets from it i am yet to learn...they say he is not pyschotic.....with re medications...we have tried 6 so far and i have left him off them only after he slit his wrist on Ritalin,.....sure they work but so far they haven't worked for him..... Sheila i have tried the video camera and he saw it and put on a show... he acted perfect........ i may try the tape recoder again...... cant do anything but try if i can find a little one that i can hide..... [/QUOTE]
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