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<blockquote data-quote="flutterbee" data-source="post: 235761"><p>You would think I qualify for disability, but when I talked to my doctor about it last she danced around the issue. She has stated that I'm disabled, she has gotten me into various specialists, tried to get me into the NIH program and got me into the Cleveland Clinic. I'm meeting with her on Thursday to talk about this, among other things. With no diagnosis and no treatment, it's not like I'm going to miraculously cure myself.</p><p></p><p>As far as psychotherapy - it's not going to take away my pain, cognitive issues or fatigue. He just assumed that since I'm having these issues that I'm having a hard time coping. No more than would be expected. I'm really skeptical about biofeedback and will have to look into it more. I don't get the hypnosis thing. I'll be willing to try massage, chiropractor and gentle PT - rigorous would incapacitate me for days. I've read about treatment for fibro and biofeedback and hypnosis weren't mentioned. And if I do have chronic fatigue also, the last thing you want to do - according to the CDC - is any kind of rigorous activity.</p><p></p><p>You know, I'm just sick of getting so many different responses from doctors. First, it's Chronic Fatigue. Then, no it's your heart. Then the heart issue is genetic, then it's not cause I don't have enough of a family history. Then pain returns and it's fibro. Then it's not - with my symptoms and my heart disease it has to be connective tissue disease. Then I see a neurologist and I don't have balance issues because I caught myself when I fell over 3 times and he tells me to see a rheumatologist. Then I see the rheumy and it's fibro. Then I another rheumy and it's not fibro and I should see a neurologist. I have. Oh, then try an endocrinologist. Endocrinologist thinks I need a rheumatologist. See an audiologist and I do have balance issues. Go to the Cleveland Clinic and it's fibro and she wants my eye doctor to do a tear test to check for Sjogren's. Eye doctor stands there and tells me that it's stupid, that it doesn't tell you anything, that you can't use it as a single diagnostic test, it's a waste of time, but I'll do it if you want to, brings out medical books to prove to me what he's saying even though I'm not questioning it; I'm just trying to follow doctor's orders. And I should have heard back from Cleveland Clinic doctor this past Friday and haven't - left her a message.</p><p></p><p> And throughout all of this, I'm left making decisions that I, as the patient, don't have the medical knowledge, training, education to make. When I told my doctor that I just want someone to tell me what to do, she *asks* if I want to see an orthopedist. I don't know. Do you think I need to see an orthopedist?</p><p></p><p>So, yet again, *I* will be the one doing the research on therapies, medications, whatever for this. I should be billing them rather than the other way around.</p></blockquote><p></p>
[QUOTE="flutterbee, post: 235761"] You would think I qualify for disability, but when I talked to my doctor about it last she danced around the issue. She has stated that I'm disabled, she has gotten me into various specialists, tried to get me into the NIH program and got me into the Cleveland Clinic. I'm meeting with her on Thursday to talk about this, among other things. With no diagnosis and no treatment, it's not like I'm going to miraculously cure myself. As far as psychotherapy - it's not going to take away my pain, cognitive issues or fatigue. He just assumed that since I'm having these issues that I'm having a hard time coping. No more than would be expected. I'm really skeptical about biofeedback and will have to look into it more. I don't get the hypnosis thing. I'll be willing to try massage, chiropractor and gentle PT - rigorous would incapacitate me for days. I've read about treatment for fibro and biofeedback and hypnosis weren't mentioned. And if I do have chronic fatigue also, the last thing you want to do - according to the CDC - is any kind of rigorous activity. You know, I'm just sick of getting so many different responses from doctors. First, it's Chronic Fatigue. Then, no it's your heart. Then the heart issue is genetic, then it's not cause I don't have enough of a family history. Then pain returns and it's fibro. Then it's not - with my symptoms and my heart disease it has to be connective tissue disease. Then I see a neurologist and I don't have balance issues because I caught myself when I fell over 3 times and he tells me to see a rheumatologist. Then I see the rheumy and it's fibro. Then I another rheumy and it's not fibro and I should see a neurologist. I have. Oh, then try an endocrinologist. Endocrinologist thinks I need a rheumatologist. See an audiologist and I do have balance issues. Go to the Cleveland Clinic and it's fibro and she wants my eye doctor to do a tear test to check for Sjogren's. Eye doctor stands there and tells me that it's stupid, that it doesn't tell you anything, that you can't use it as a single diagnostic test, it's a waste of time, but I'll do it if you want to, brings out medical books to prove to me what he's saying even though I'm not questioning it; I'm just trying to follow doctor's orders. And I should have heard back from Cleveland Clinic doctor this past Friday and haven't - left her a message. And throughout all of this, I'm left making decisions that I, as the patient, don't have the medical knowledge, training, education to make. When I told my doctor that I just want someone to tell me what to do, she *asks* if I want to see an orthopedist. I don't know. Do you think I need to see an orthopedist? So, yet again, *I* will be the one doing the research on therapies, medications, whatever for this. I should be billing them rather than the other way around. [/QUOTE]
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