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I need help figuring out where to turn/go next.
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<blockquote data-quote="DammitJanet" data-source="post: 363338" data-attributes="member: 1514"><p>Ok...some info. Original doctor is still at Duke. He is the Head of Ortho there but only does ankles and feet. One thing I am very concerned about with dealing with Duke at this point is their specific areas of expertise. You see Dr X in Clinic X for the shoulder and he wont even look at the back or spine or consider that it may be part and parcel of the whole condition. Lets not talk about the fact that his feet were involved as a baby. Lets not talk about the fact that he cant breathe well now. </p><p></p><p>Go to a lung specialist clinic, go to a spine clinic, go to a geneticist clinic. Ok...but lets think big picture too. I think this is all one thing. It isnt that he fell and hurt his toe so we need to see a foot dr, had a car wreck and broke his collar bone, etc. This is all one huge birth defect. </p><p></p><p>They wanted to act like it had been so long since we had done anything but it really hasnt been when you consider I was also dealing with an out of control mentally ill kid so which came in more important...his mental health or his physical? At the time his shoulder was pretty good so I dealt with the mental health stuff. Their clinic dismissed us. You dont know how ticked off I am...lol. Every time I feel like I have finally gotten to the point I feel like I shouldnt feel some sort of responsibility for Cory's life or problems, something like this pops up. It is agonizing to see him writhe in pain and know that I may well be the cause of it. And I cant do a dang thing about it.</p></blockquote><p></p>
[QUOTE="DammitJanet, post: 363338, member: 1514"] Ok...some info. Original doctor is still at Duke. He is the Head of Ortho there but only does ankles and feet. One thing I am very concerned about with dealing with Duke at this point is their specific areas of expertise. You see Dr X in Clinic X for the shoulder and he wont even look at the back or spine or consider that it may be part and parcel of the whole condition. Lets not talk about the fact that his feet were involved as a baby. Lets not talk about the fact that he cant breathe well now. Go to a lung specialist clinic, go to a spine clinic, go to a geneticist clinic. Ok...but lets think big picture too. I think this is all one thing. It isnt that he fell and hurt his toe so we need to see a foot dr, had a car wreck and broke his collar bone, etc. This is all one huge birth defect. They wanted to act like it had been so long since we had done anything but it really hasnt been when you consider I was also dealing with an out of control mentally ill kid so which came in more important...his mental health or his physical? At the time his shoulder was pretty good so I dealt with the mental health stuff. Their clinic dismissed us. You dont know how ticked off I am...lol. Every time I feel like I have finally gotten to the point I feel like I shouldnt feel some sort of responsibility for Cory's life or problems, something like this pops up. It is agonizing to see him writhe in pain and know that I may well be the cause of it. And I cant do a dang thing about it. [/QUOTE]
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