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I need help figuring out where to turn/go next.
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<blockquote data-quote="Tiapet" data-source="post: 363392" data-attributes="member: 455"><p>Janet, I can offer you a little insight into how Duke is working now and may help you navigate how to get what help you need and want with them there. It may or may not work, I think it will however, based on experiences.</p><p></p><p>First of all, if you can, get Cory in with a doctor at Duke Family Medicine (the main doctors) on Erwin Rd. My recommendation is to call and get Dr. Truijilo (Director who is good). Don't accept an appointment with anyone else, ask specifically for an appointment with her. She will act as "the gate keeper" and coordinate all appointments and basically be able to listen and "hear" that this is a "big picture" case. Explain to her what has gone on, what is going on, what you've been through. She won't be able to help you with the records though. I will explain that step next. Once you are in with her, she can guide you through and help you get to the right people, the right testing that you will want and need and since I know how strong an advocate you are, you won't have a problem I feel.</p><p></p><p>Next step. You can go about this two ways simultaneously or take it one step at a time and see which actually works best. I suggest you contact patient relations and discuss with them your problem regarding records access and how crucial it is that you find and GET those records for Cory. It may take them a small amount of time to work on it but they are your BEST allie in getting things done and done right as Duke WANTS you to be happy with what they do unconditionally! I think I understand you "talked" to them about the records but did you actually GO to the records department? It's in the basement of the hopsital (especially if that is where the surgury was done). It seems they have different locations of records based on where and what you have done. For example, if you are in clinics, the records stay within there and if you are outpatient at a doctors office somewhere part of their network there, the records are there but if you have anything to do with the hospital, then of course they are all there. Confusing for sure. I really think though, that the patient relations is going to be your best best to get things done.</p><p></p><p>It is so messed up how the doctors work on specialties and this one won't think about that or this, etc.. I understand your frustration on so many levels.But I'm telling you, having the gatekeeper that focuses on the over all picture actually gets things done and coordinates everyone and keeps everyone in line with their computer system and notes. A BIG plus is that your account is viewable online and YOU can see every lab, test (like xray, etc) that is done and the results (and yes you can print the report at home too). In some cases, if their is feedback from the doctor, it's there as well (in my case my doctor notes if my levels are ok or what was found on a test is expected or what is being done next, etc..). This is a new way of doing things for them in the last 3 years. </p><p></p><p>Give it a secod try this way and see if it helps. I feel bad for Cory, I feel the pain and frustration but I'm here to offer some advice and suggestion that might help you on this journey. If I can make it better and more productive, even better! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> Good luck and if you need anything else, let me know.</p></blockquote><p></p>
[QUOTE="Tiapet, post: 363392, member: 455"] Janet, I can offer you a little insight into how Duke is working now and may help you navigate how to get what help you need and want with them there. It may or may not work, I think it will however, based on experiences. First of all, if you can, get Cory in with a doctor at Duke Family Medicine (the main doctors) on Erwin Rd. My recommendation is to call and get Dr. Truijilo (Director who is good). Don't accept an appointment with anyone else, ask specifically for an appointment with her. She will act as "the gate keeper" and coordinate all appointments and basically be able to listen and "hear" that this is a "big picture" case. Explain to her what has gone on, what is going on, what you've been through. She won't be able to help you with the records though. I will explain that step next. Once you are in with her, she can guide you through and help you get to the right people, the right testing that you will want and need and since I know how strong an advocate you are, you won't have a problem I feel. Next step. You can go about this two ways simultaneously or take it one step at a time and see which actually works best. I suggest you contact patient relations and discuss with them your problem regarding records access and how crucial it is that you find and GET those records for Cory. It may take them a small amount of time to work on it but they are your BEST allie in getting things done and done right as Duke WANTS you to be happy with what they do unconditionally! I think I understand you "talked" to them about the records but did you actually GO to the records department? It's in the basement of the hopsital (especially if that is where the surgury was done). It seems they have different locations of records based on where and what you have done. For example, if you are in clinics, the records stay within there and if you are outpatient at a doctors office somewhere part of their network there, the records are there but if you have anything to do with the hospital, then of course they are all there. Confusing for sure. I really think though, that the patient relations is going to be your best best to get things done. It is so messed up how the doctors work on specialties and this one won't think about that or this, etc.. I understand your frustration on so many levels.But I'm telling you, having the gatekeeper that focuses on the over all picture actually gets things done and coordinates everyone and keeps everyone in line with their computer system and notes. A BIG plus is that your account is viewable online and YOU can see every lab, test (like xray, etc) that is done and the results (and yes you can print the report at home too). In some cases, if their is feedback from the doctor, it's there as well (in my case my doctor notes if my levels are ok or what was found on a test is expected or what is being done next, etc..). This is a new way of doing things for them in the last 3 years. Give it a secod try this way and see if it helps. I feel bad for Cory, I feel the pain and frustration but I'm here to offer some advice and suggestion that might help you on this journey. If I can make it better and more productive, even better! :) Good luck and if you need anything else, let me know. [/QUOTE]
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