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I Saw The Latest One
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<blockquote data-quote="susiestar" data-source="post: 411478" data-attributes="member: 1233"><p>Right now she is asleep. She is very tired after these things happen. She is often awake a lot at night and asleep for part of the day. Part of this is because the pain from the muscle problems is worse at night and it makes it hard for her to sleep, the other is because this has always been her normal sleep/wake cycle. We fought it for many years but it isn't a winning battle. Long as she functions and does school stuff, etc... when she is awake I don't fight it too much any more.</p><p> </p><p>I hope the neuro will pay attention. We never know with him. Chances are he will insist on an appointment and put us off for 2-3 months or more before seeing us, in which case I will have a tantrum and go to the city ER to get some type of treatment. WOn't accomplish much because they will give us a neuro referral and make an appointment for 2-3 mos away, but it will start a paper trail. We might be able to get the pediatrician to do something, but I doubt it. Worth a try.</p><p> </p><p>I don't know if it is catatonia, it seems more like a seizure to me. Not sure why, maybe because I am not fully familiar with catatonia. Either way, it helps to know I am not alone.</p></blockquote><p></p>
[QUOTE="susiestar, post: 411478, member: 1233"] Right now she is asleep. She is very tired after these things happen. She is often awake a lot at night and asleep for part of the day. Part of this is because the pain from the muscle problems is worse at night and it makes it hard for her to sleep, the other is because this has always been her normal sleep/wake cycle. We fought it for many years but it isn't a winning battle. Long as she functions and does school stuff, etc... when she is awake I don't fight it too much any more. I hope the neuro will pay attention. We never know with him. Chances are he will insist on an appointment and put us off for 2-3 months or more before seeing us, in which case I will have a tantrum and go to the city ER to get some type of treatment. WOn't accomplish much because they will give us a neuro referral and make an appointment for 2-3 mos away, but it will start a paper trail. We might be able to get the pediatrician to do something, but I doubt it. Worth a try. I don't know if it is catatonia, it seems more like a seizure to me. Not sure why, maybe because I am not fully familiar with catatonia. Either way, it helps to know I am not alone. [/QUOTE]
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