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I want a diagnosis
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<blockquote data-quote="Steely" data-source="post: 139890" data-attributes="member: 3301"><p>You know, the one thing that you have not had is the neuropsychologist evaluation, correct? This is the one test that would rule out Autism Spectrum Disorders (ASD). You said you had him evaled at an Autism clinic - how did they evaluation him? Perhaps for your sanity this is the one test you could start pressuring the professionals around you with its importance. Insurance would have to pay (I think) if the professionals treating your son demand that this would be in his best interest.</p><p></p><p>As far as anxiety, cognitive therapy is probably the best route for that because it sounds like his anxiety has manifested itself into some compulsive soothing rituals, like always needing you by his side at bedtime.</p><p></p><p>FWIW my son has had every test possible.........including 3 neuropsychs...........and every time they were able to see that he has a NonVerbal Learning Disorder, but was not quite AS! He had many of the characteristic, just not enough to make a full diagnosis. So I was left, basically, with where I started - just knowing difficult child is a quirky, moody, angry child. </p><p></p><p>I have explained many times the details of his brain chemistry and what causes bi-polar and what a NonVerbal Learning Disorder (NVLD) is. I think he understands all of that, but it does not really help make him feel better. It is like a diabetic child. They understand what it is in their body is going wrong, and why they have to take medications - but that does not take away the pain that they feel different. That pain has to be addressed completely separately from the education of the illness.</p><p></p><p>It is all very frustrating - I am with ya!!! </p><p>Try to take many deep breaths, and try to find some peace in life this weekend. I know, for me, I start to get really obsessive about things like this, and get tunnel vision, which only makes me more crazy and unhappy.</p></blockquote><p></p>
[QUOTE="Steely, post: 139890, member: 3301"] You know, the one thing that you have not had is the neuropsychologist evaluation, correct? This is the one test that would rule out Autism Spectrum Disorders (ASD). You said you had him evaled at an Autism clinic - how did they evaluation him? Perhaps for your sanity this is the one test you could start pressuring the professionals around you with its importance. Insurance would have to pay (I think) if the professionals treating your son demand that this would be in his best interest. As far as anxiety, cognitive therapy is probably the best route for that because it sounds like his anxiety has manifested itself into some compulsive soothing rituals, like always needing you by his side at bedtime. FWIW my son has had every test possible.........including 3 neuropsychs...........and every time they were able to see that he has a NonVerbal Learning Disorder, but was not quite AS! He had many of the characteristic, just not enough to make a full diagnosis. So I was left, basically, with where I started - just knowing difficult child is a quirky, moody, angry child. I have explained many times the details of his brain chemistry and what causes bi-polar and what a NonVerbal Learning Disorder (NVLD) is. I think he understands all of that, but it does not really help make him feel better. It is like a diabetic child. They understand what it is in their body is going wrong, and why they have to take medications - but that does not take away the pain that they feel different. That pain has to be addressed completely separately from the education of the illness. It is all very frustrating - I am with ya!!! Try to take many deep breaths, and try to find some peace in life this weekend. I know, for me, I start to get really obsessive about things like this, and get tunnel vision, which only makes me more crazy and unhappy. [/QUOTE]
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