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General Parenting
I want to scream after neuro visit!
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<blockquote data-quote="buddy" data-source="post: 506106" data-attributes="member: 12886"><p>What's that old Western line??? "Get a ROPE"</p><p></p><p>To be honest, this is exactly what happened to us when we needed someone to take over our neuro care when our neurologist had to stay home with her kids for a while. Some neuro's only get what they can see in their back and white tests....</p><p></p><p>They dont get the neuropsychologist stuff.</p><p></p><p>In fact Q's seizures were dismissed too.... they didn't add the right leads and until they did, no way to document what was going on. Do you have the equivalent of an inpatient seizure evaluation? That is how we got it. </p><p></p><p>Unless they are displaying symptoms at the time they do the eeg or the doctor is there, we are often dismissed. Epilepsy boards are full of people who had been told for many many years that they were to blame, were faking, needed to stop the whining etc.</p><p></p><p>I would love to run an electrical current through his temporal lobes over and over, even minor ones, and see what he thinks!</p><p></p><p>send the MRI to another consult. Go to someone else for the neuro evaluation. Ignore this dismissive jerk.</p></blockquote><p></p>
[QUOTE="buddy, post: 506106, member: 12886"] What's that old Western line??? "Get a ROPE" To be honest, this is exactly what happened to us when we needed someone to take over our neuro care when our neurologist had to stay home with her kids for a while. Some neuro's only get what they can see in their back and white tests.... They dont get the neuropsychologist stuff. In fact Q's seizures were dismissed too.... they didn't add the right leads and until they did, no way to document what was going on. Do you have the equivalent of an inpatient seizure evaluation? That is how we got it. Unless they are displaying symptoms at the time they do the eeg or the doctor is there, we are often dismissed. Epilepsy boards are full of people who had been told for many many years that they were to blame, were faking, needed to stop the whining etc. I would love to run an electrical current through his temporal lobes over and over, even minor ones, and see what he thinks! send the MRI to another consult. Go to someone else for the neuro evaluation. Ignore this dismissive jerk. [/QUOTE]
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I want to scream after neuro visit!
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