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I want to scream after neuro visit!
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<blockquote data-quote="buddy" data-source="post: 506163" data-attributes="member: 12886"><p>I think these guys sometimes have their very narrow definitions. For example, the doctor inpatient said, these "abnormal electrical discharges" are happening all day every day and night...they wake him and seem to affect his mood, vision and behavior. Now, her partner (not a seizure specialist but a neuro) says, these are simple seizures. Seizure specialist says they technically do not rise to the strict definition YET SHE is the one who put him on Lyrica! They chose lyrica because it was one his body could metabolize (with the enzyme thing) and because for many it is used for headaches and anxiety. For him doesn't seem to help with anxiety but it got rid of the head aches, which DUH seem to only come after seizures so of course it did. </p><p></p><p>Bottom line, there is something going on and IT MATCHES his symptoms. That right there does not take a genius to figure out. It may not be "seizures" or epilepsy by strict definition but for example...where Q has his brain injury on the frontal lobe area...there is always aberrant patterns. It is these spikes that they look for etc...</p><p></p><p>but clearly the eeg is still important because it shows problems that back up your experiences with him. I am hoping your psychiatrist will use this guys info as just evidence there is nothing TERRIBLE going on but also as a clue to what IS going on.... and it may not be a bad idea to try a seizure medication as they are used for other issues including the behavioral concerns you have noted. will be interesting to see what psychiatrist says. </p><p></p><p>Dont take the extra comments from this dink to heart. That is exactly the kind of thing we have all experienced some where along the line and we always find out they were just limited and ignorant. </p><p></p><p>He might be THE expert in one thing but certainly not ALL things and certainly not YOUR CHILD. </p><p></p><p>DO not spank him... not yet anyway (smile)... a sudden change like that will demoralize him. Remember, he has been worried about being "sick" too. This has added a huge weight to his already over burdened heart. Just MHO I wish you and TeDo's little one could see Q's therapist.... she is so good with these guys. I saw her take two other boys in when Q was there for Occupational Therapist (OT) and wow is she good with them. We got lucky.</p></blockquote><p></p>
[QUOTE="buddy, post: 506163, member: 12886"] I think these guys sometimes have their very narrow definitions. For example, the doctor inpatient said, these "abnormal electrical discharges" are happening all day every day and night...they wake him and seem to affect his mood, vision and behavior. Now, her partner (not a seizure specialist but a neuro) says, these are simple seizures. Seizure specialist says they technically do not rise to the strict definition YET SHE is the one who put him on Lyrica! They chose lyrica because it was one his body could metabolize (with the enzyme thing) and because for many it is used for headaches and anxiety. For him doesn't seem to help with anxiety but it got rid of the head aches, which DUH seem to only come after seizures so of course it did. Bottom line, there is something going on and IT MATCHES his symptoms. That right there does not take a genius to figure out. It may not be "seizures" or epilepsy by strict definition but for example...where Q has his brain injury on the frontal lobe area...there is always aberrant patterns. It is these spikes that they look for etc... but clearly the eeg is still important because it shows problems that back up your experiences with him. I am hoping your psychiatrist will use this guys info as just evidence there is nothing TERRIBLE going on but also as a clue to what IS going on.... and it may not be a bad idea to try a seizure medication as they are used for other issues including the behavioral concerns you have noted. will be interesting to see what psychiatrist says. Dont take the extra comments from this dink to heart. That is exactly the kind of thing we have all experienced some where along the line and we always find out they were just limited and ignorant. He might be THE expert in one thing but certainly not ALL things and certainly not YOUR CHILD. DO not spank him... not yet anyway (smile)... a sudden change like that will demoralize him. Remember, he has been worried about being "sick" too. This has added a huge weight to his already over burdened heart. Just MHO I wish you and TeDo's little one could see Q's therapist.... she is so good with these guys. I saw her take two other boys in when Q was there for Occupational Therapist (OT) and wow is she good with them. We got lucky. [/QUOTE]
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