buddy
New Member
My computer was left on but I wasn't actually reading anything because I got some kind of bug....stomach and headache, so every time I tried to read I got nauseous. Sorry, guys....but I feel much better now, just was worn out yesterday and yet had to do the normal being a mom stuff....so no time to post.
Had a couple of issues with school....not Q's issues, just paperwork and stuff. They had Q call me to ask that I send an ROI back and if he brought it he could get a treat at their coffee house. Well, problem with that is I dont use him to transport papers because they could get lost, or ripped or whatever....and especially if a legal document.
THey knew that, of course. But that made him obsess that he wouldn't get to go to the student coffee house and so he bullied me etc. I agreed to let him take the paper and never argued with him about it but did send a blank paper and handed them the actual ROI. It felt weird because it was like I didn't have a right to choose to sign the ROI. I did want to sign this one but what if it was something I didn't want to sign?
They needed it because they couldnt' find one (I had already signed this one...for my advocate) and they had written a response saying why we were not doing the independent evaluation, but still doing an evaluation using their person. Turns out they had their lawyer write that. Seems like overkill to me and those kinds of things all add up to distrust, like they are being so careful to gather things together. I don't know, it felt funny and I didn't like Q being put in the middle of adult matters.
So, I wrote to them again reminding them that any IEP business needs to be directed to me, and he can't even overhear it. Having him call and demand I send it with him was not cool.
AS for his birthday??? It made me feel much better. It went so well I was able to let go of any sadness I had about his being so delayed/disabled....and focused instead on how far we have come just this year. Last year at this time we had a dinner and he was blurty and rude to me, and in the end shoved my mom and my sister withheld his birthday gift etc.
This year, we went to this HUGE Asian buffet/hibachi, sushi bar place.....it was really fresh and good. Q has wanted to go there (on his list of buildings and restaurants he keeps....lol) since we moved here. Everyone loved it. My three sisters and mom came, one sister's boyfriend and a niece and nephew also came. They were all like, OMG, this year is so different. He got gifts and the restaurant made this cool sculptured fruit plate for him with a candle! He requested we not sing and everyone said fine. He opened amazing gifts and showed appreciation even for the cards. Lots of hugs and sweet talk all around. It was lovely.
The providers that started with us about the time Q took the medication that he reacted to and have only known him since we went into crisis mode....are now getting to see why I was so resistant to his going to a residential placement etc. They are seeing the fun side, the potential he has etc.
He just got his second pay from his school job and he was sooooo proud. He is using his phone totally appropriately. Everyone is shocked about that. he is even setting a morning alarm ...as well as alarms for when Integrated Listening Systems (ILS) people start and stop etc. Pretty impressive actually.
He is Q, that wont change (had an ugly morning, but not over the top thank heaven...well to me, I imagine if anyone else saw him they would have been shocked at his words and behaviors)....but it is short stuff, generally does not go over the top (if so, it is once a month versus multiple times per day and no actual bruise types of behaviors for a long time...QUICK KNOCK WOOD).
Having these great times and super reports from his therapies and social groups and Integrated Listening Systems (ILS) sessions....makes all those times bearable.
Yipee....
Had a couple of issues with school....not Q's issues, just paperwork and stuff. They had Q call me to ask that I send an ROI back and if he brought it he could get a treat at their coffee house. Well, problem with that is I dont use him to transport papers because they could get lost, or ripped or whatever....and especially if a legal document.
THey knew that, of course. But that made him obsess that he wouldn't get to go to the student coffee house and so he bullied me etc. I agreed to let him take the paper and never argued with him about it but did send a blank paper and handed them the actual ROI. It felt weird because it was like I didn't have a right to choose to sign the ROI. I did want to sign this one but what if it was something I didn't want to sign?
They needed it because they couldnt' find one (I had already signed this one...for my advocate) and they had written a response saying why we were not doing the independent evaluation, but still doing an evaluation using their person. Turns out they had their lawyer write that. Seems like overkill to me and those kinds of things all add up to distrust, like they are being so careful to gather things together. I don't know, it felt funny and I didn't like Q being put in the middle of adult matters.
So, I wrote to them again reminding them that any IEP business needs to be directed to me, and he can't even overhear it. Having him call and demand I send it with him was not cool.
AS for his birthday??? It made me feel much better. It went so well I was able to let go of any sadness I had about his being so delayed/disabled....and focused instead on how far we have come just this year. Last year at this time we had a dinner and he was blurty and rude to me, and in the end shoved my mom and my sister withheld his birthday gift etc.
This year, we went to this HUGE Asian buffet/hibachi, sushi bar place.....it was really fresh and good. Q has wanted to go there (on his list of buildings and restaurants he keeps....lol) since we moved here. Everyone loved it. My three sisters and mom came, one sister's boyfriend and a niece and nephew also came. They were all like, OMG, this year is so different. He got gifts and the restaurant made this cool sculptured fruit plate for him with a candle! He requested we not sing and everyone said fine. He opened amazing gifts and showed appreciation even for the cards. Lots of hugs and sweet talk all around. It was lovely.
The providers that started with us about the time Q took the medication that he reacted to and have only known him since we went into crisis mode....are now getting to see why I was so resistant to his going to a residential placement etc. They are seeing the fun side, the potential he has etc.
He just got his second pay from his school job and he was sooooo proud. He is using his phone totally appropriately. Everyone is shocked about that. he is even setting a morning alarm ...as well as alarms for when Integrated Listening Systems (ILS) people start and stop etc. Pretty impressive actually.
He is Q, that wont change (had an ugly morning, but not over the top thank heaven...well to me, I imagine if anyone else saw him they would have been shocked at his words and behaviors)....but it is short stuff, generally does not go over the top (if so, it is once a month versus multiple times per day and no actual bruise types of behaviors for a long time...QUICK KNOCK WOOD).
Having these great times and super reports from his therapies and social groups and Integrated Listening Systems (ILS) sessions....makes all those times bearable.
Yipee....
Sorry you have been sick. Flus and even common colds seem to be especially nasty this year. Happy you are feeling a bit better. Try to take good care of yourself, okay?
