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I'm not attached to my body
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<blockquote data-quote="Big Bad Kitty" data-source="post: 211585" data-attributes="member: 3647"><p>Hey sweetie.</p><p></p><p>OK, a little history on my mom. When I was in 5th grade she was diagnosis'd with an inner ear infection. A year later they said no, it's TMJ syndrome. She had to get plastic thingies to wear in her mouth at night to align her jaw. A couple years after that, she was told that she never had TMJ, she has MS. For over 20 years she was being treated for the symptoms of MS. She began to get migraines (never had them before) and then was diagnosis'd with CFS and FM. Yet every time they had a new MS treatment out, it would not work on her. </p><p></p><p>A couple years ago she saw a new neuro who ordered an MRI of her brain. When he saw it, he asked for copies of previous MRIs. He studied those and asked her who diagnosis'd her with MS, because from what he can see, she does not have it. He took another set of MRIs and a CT scan and found that she had Chiari syndrome (brain malformation). She had brain surgery. </p><p></p><p>I wish I could say she lived happily ever after, but I can't. She still gets migraines. She gets tired. But what she does not get is what she used to call her "MS attacks", where she needed a cane to walk or where an entire one side of her body went numb. My point is that she had recieved countless MRIs anc CT scans over the years, and it took OVER 20 YEARS for someone to catch the brain malformation. </p><p></p><p>I wonder if something like that...whether it is Chiari, or ANY oversight in one of your tests somewhere...could be an issue for you?</p><p></p><p>You are SO in my prayers. I mean, SOOOOOO in my prayers.</p></blockquote><p></p>
[QUOTE="Big Bad Kitty, post: 211585, member: 3647"] Hey sweetie. OK, a little history on my mom. When I was in 5th grade she was diagnosis'd with an inner ear infection. A year later they said no, it's TMJ syndrome. She had to get plastic thingies to wear in her mouth at night to align her jaw. A couple years after that, she was told that she never had TMJ, she has MS. For over 20 years she was being treated for the symptoms of MS. She began to get migraines (never had them before) and then was diagnosis'd with CFS and FM. Yet every time they had a new MS treatment out, it would not work on her. A couple years ago she saw a new neuro who ordered an MRI of her brain. When he saw it, he asked for copies of previous MRIs. He studied those and asked her who diagnosis'd her with MS, because from what he can see, she does not have it. He took another set of MRIs and a CT scan and found that she had Chiari syndrome (brain malformation). She had brain surgery. I wish I could say she lived happily ever after, but I can't. She still gets migraines. She gets tired. But what she does not get is what she used to call her "MS attacks", where she needed a cane to walk or where an entire one side of her body went numb. My point is that she had recieved countless MRIs anc CT scans over the years, and it took OVER 20 YEARS for someone to catch the brain malformation. I wonder if something like that...whether it is Chiari, or ANY oversight in one of your tests somewhere...could be an issue for you? You are SO in my prayers. I mean, SOOOOOO in my prayers. [/QUOTE]
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