Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
I'm worried
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="slsh" data-source="post: 359189" data-attributes="member: 8"><p>Sharon - I went to a mtg a couple years ago (support group for families that had the same grant we had for thank you), and there was a family there who I think had their son on clozapine. It was a very different set of circumstances in terms of behaviors and diagnosis (early onset schizophrenia, with *severe* regression to an almost catatonic state). They actually went to the NIH in Maryland to be put in a study, spent months there. Bottom line, while they went to MD with a kiddo who had regressed, they came home with a pretty functional kiddo. </p><p></p><p>As with all medications, it's a guess on the dr's part. It is absolutely terrifying (to me, anyway) to trial a new medication. Especially one that is known to potentially have serious negative side effects. on the other hand, if it is a medication that difficult child can tolerate without side effects and if it has a positive effect on his behaviors, it's worth it.</p><p></p><p>I don't know - there were times when I felt like I was being asked to make choices that were far outside of my pay grade and cognitive ability. How can a parent possibly weight the potential risks versus the potential benefits, when we just want for our kids to be healthy, safe, and happy? </p><p></p><p>I get the sense that you have a lot of faith in and trust of difficult child's psychiatrist, and pretty much I think that's what it boils down to. I think you and husband need to follow your gut on this one, as always, and if your gut is saying it's worth a shot, then... it's worth a shot. If your gut is keeping you up at nights with- worry, then maybe not.</p><p></p><p>Many gentle hugs to you. I'm so sorry you're faced with- this decision.</p></blockquote><p></p>
[QUOTE="slsh, post: 359189, member: 8"] Sharon - I went to a mtg a couple years ago (support group for families that had the same grant we had for thank you), and there was a family there who I think had their son on clozapine. It was a very different set of circumstances in terms of behaviors and diagnosis (early onset schizophrenia, with *severe* regression to an almost catatonic state). They actually went to the NIH in Maryland to be put in a study, spent months there. Bottom line, while they went to MD with a kiddo who had regressed, they came home with a pretty functional kiddo. As with all medications, it's a guess on the dr's part. It is absolutely terrifying (to me, anyway) to trial a new medication. Especially one that is known to potentially have serious negative side effects. on the other hand, if it is a medication that difficult child can tolerate without side effects and if it has a positive effect on his behaviors, it's worth it. I don't know - there were times when I felt like I was being asked to make choices that were far outside of my pay grade and cognitive ability. How can a parent possibly weight the potential risks versus the potential benefits, when we just want for our kids to be healthy, safe, and happy? I get the sense that you have a lot of faith in and trust of difficult child's psychiatrist, and pretty much I think that's what it boils down to. I think you and husband need to follow your gut on this one, as always, and if your gut is saying it's worth a shot, then... it's worth a shot. If your gut is keeping you up at nights with- worry, then maybe not. Many gentle hugs to you. I'm so sorry you're faced with- this decision. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
I'm worried
Top