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<blockquote data-quote="buddy" data-source="post: 464639" data-attributes="member: 12886"><p>OH I am sending you such a huge mommy hug! I read your 1st post to catch up. I am so sorry things are such a struggle. I can relate to your hesitance to say he is autistic becuase even though I am an early interventon Speech Language Pathologist (SLP) and believe in early diagnosis in order to get the right therapies and education, I could only say Autistic-like until my son was age 5. He was in early intervention under a general delay category but still.... Now though, I have to say the Autism diagnosis has given us the MOST power when it comes to asking for appropriate educational services, therapies and getting medical help. I also have my son certified as permanently disabled by the state and he gets a large medical assistance waiver to help him receive therapies that regular insurance will deny. This includes home therapeutic specialists that when he was young included autism specialists outside of the early intervention he was getting in the schools. You can see if your county has a devlopmenal disabilities case worker (they are not child protection...they help you access funds like family support grants, waivers, etc. to get things you need at home to help care for your child. including respite!) I am biased toward public early intervention because I have worked in that field for years but it really depends where you live. Some areas are amazing and some just okay and some you are right to avoid. Even if you choose private school, federal law mandates that if your child qualifies for an IEP you can receive special education services like speech/language, Special Education. teaching and Occupational therapy or physical therapy if they qualify...it has to take place off the private school campus so you may need to have him bussed or drive him to the sessions...of course if you even ever get to that point. </p><p>Here is what I have learned from hearing people for 20 plus years in education and with families....and most certainly with my own son. Whether or not we decide to get a formal diagnosis or label or category for our children, the fact is, they WILL be labeled. People will call them troubled, spoiled, bad, naughty, behavior problems, the kid to avoid, etc. I prefer an appropriate, more accurate label or term because as the child gets older you have a way to explain (Not to excuse but a real explanation) what is going on. It hurts the child's and your own self concept to be mislabeled. This year I even told some peers about my son's issues and guess what, they went out of their way to help him be included, even when he was not very fun to be around!</p><p>Sounds like many have told you that the symptoms you listed do hint at Autism Spectrum, but whether or not that is true please know that early intervention is the one thing that consistently is shown to improve long term results. There are many ways and combinations of ways to do this. The public schools are free and the therapists attend the exact same universities and have the same degrees and certifications as people in private practice. For Speech Language Pathologist (SLP)'s like me they often have added certifications like a teaching degree. Just saying this to help your comfort level because it was not always this way and for sure in some areas, districts are not following federal special education laws. You have legal rights within the special education system and I have read thru the sp. ed. part of this site and it sure seems many others there can help you if you ever get to that point. </p><p></p><p>Now, as for a respite time from your son, it is common sense that ANY parent needs a break in order to keep mentally healthy. Especially those of us doing it on our own. Sorry your mom couldn't just say, okay I will support you in that and give you a break....I wish that for you. </p><p></p><p>I see you struggling but I also see a mommy who is really fighting the good fight. Hang in there and continue to be open but trust your gut at the same time. It is a hard road but it is clear you love your child and are doing what you feel is best. Dont worry about cps, that is stressful, but if I was the worker who took that call I would be wondering what help I could get for your MOM!</p></blockquote><p></p>
[QUOTE="buddy, post: 464639, member: 12886"] OH I am sending you such a huge mommy hug! I read your 1st post to catch up. I am so sorry things are such a struggle. I can relate to your hesitance to say he is autistic becuase even though I am an early interventon Speech Language Pathologist (SLP) and believe in early diagnosis in order to get the right therapies and education, I could only say Autistic-like until my son was age 5. He was in early intervention under a general delay category but still.... Now though, I have to say the Autism diagnosis has given us the MOST power when it comes to asking for appropriate educational services, therapies and getting medical help. I also have my son certified as permanently disabled by the state and he gets a large medical assistance waiver to help him receive therapies that regular insurance will deny. This includes home therapeutic specialists that when he was young included autism specialists outside of the early intervention he was getting in the schools. You can see if your county has a devlopmenal disabilities case worker (they are not child protection...they help you access funds like family support grants, waivers, etc. to get things you need at home to help care for your child. including respite!) I am biased toward public early intervention because I have worked in that field for years but it really depends where you live. Some areas are amazing and some just okay and some you are right to avoid. Even if you choose private school, federal law mandates that if your child qualifies for an IEP you can receive special education services like speech/language, Special Education. teaching and Occupational therapy or physical therapy if they qualify...it has to take place off the private school campus so you may need to have him bussed or drive him to the sessions...of course if you even ever get to that point. Here is what I have learned from hearing people for 20 plus years in education and with families....and most certainly with my own son. Whether or not we decide to get a formal diagnosis or label or category for our children, the fact is, they WILL be labeled. People will call them troubled, spoiled, bad, naughty, behavior problems, the kid to avoid, etc. I prefer an appropriate, more accurate label or term because as the child gets older you have a way to explain (Not to excuse but a real explanation) what is going on. It hurts the child's and your own self concept to be mislabeled. This year I even told some peers about my son's issues and guess what, they went out of their way to help him be included, even when he was not very fun to be around! Sounds like many have told you that the symptoms you listed do hint at Autism Spectrum, but whether or not that is true please know that early intervention is the one thing that consistently is shown to improve long term results. There are many ways and combinations of ways to do this. The public schools are free and the therapists attend the exact same universities and have the same degrees and certifications as people in private practice. For Speech Language Pathologist (SLP)'s like me they often have added certifications like a teaching degree. Just saying this to help your comfort level because it was not always this way and for sure in some areas, districts are not following federal special education laws. You have legal rights within the special education system and I have read thru the sp. ed. part of this site and it sure seems many others there can help you if you ever get to that point. Now, as for a respite time from your son, it is common sense that ANY parent needs a break in order to keep mentally healthy. Especially those of us doing it on our own. Sorry your mom couldn't just say, okay I will support you in that and give you a break....I wish that for you. I see you struggling but I also see a mommy who is really fighting the good fight. Hang in there and continue to be open but trust your gut at the same time. It is a hard road but it is clear you love your child and are doing what you feel is best. Dont worry about cps, that is stressful, but if I was the worker who took that call I would be wondering what help I could get for your MOM! [/QUOTE]
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