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Janna's post has me thinking...
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<blockquote data-quote="totoro" data-source="post: 88546" data-attributes="member: 3155"><p>So reading some of your histories like MWM and SRL and Sara PA and Janna as well as a bunch of others... I am sitting here thinking OK we all seem intelligent. Although how much did we know in the beginning?</p><p></p><p>What were the missteps in getting a missed diagnosis for some of you... how do we know if it is accurate if people like Janna can go through all of this and then get the diagnosis changed, does this also involve a changing child/hormones etc. Does this just happen sometimes? </p><p></p><p>When we were starting, not very long ago, it has been a little over a year since we have honestly been looking for answers. The one Psychologist, who specialised in Autism, gave K the Pervasive Developmental Disorder (PDD)-not otherwise specified diagnosis, without barely talking to us, he gave us a shortened Vineland scale... never met K at that point. Told us she would need to be on Risperdal.He also told us she didn't need a psychiatrist! I was like what in the He11 are you talking about? He then went on to explain that the diagnosis really didn't matter, but to take his diagnosis because it would get us into the special services faster and easier!?!? Little did I know he was right!!! Ethical or moral maybe not, but he was right... and I don't believe she was or is truly in the spectrum, or at least that is not her biggest problem...</p><p>She is basically textbook BiPolar (BP) from what the author of the Bipolar Child and psychiatrist1(From Chicago) have said...The author of The Bipolar Child said her symptoms present as a textbook BiPolar (BP) case...</p><p>But psychiatrist1 saw her unmedicated... now psychiatrist3 has only seen her medicated. She is a different child medicated. He has taken his time to get comfortable with the diagnosis, I think he was trying to treat the ADHD first and now he sees that it is much more than that...</p><p></p><p>I guess I am just wondering do most of you feel comfortable with your diagnosis's? What if it was changed tommorow? For me N seems more on the Spectrum right now than BiPolar (BP)... She may even just have sensory stuff and very high functioning Autism? </p><p>But like SRL we have adapted our lives and home... alot of people don't get it, but they don't live it!</p><p></p><p>I just am wondering out loud here... I mean I have the history... the family, myself... K presented all of the symptoms, even with the voices, those came out on their own, she brought those up herself, no-one prodded her. Her talk of wanting to die has been most times not during a rage, just slowly sinks into despair and depression... she has had the violent talk of dying also. When I think of myself as a kid and read the BiPolar (BP) books it is all so clear... scary but clear. And K is so much like me and the books, I wish she wasn't. I don't know which diagnosis is "better". For me to see all of the medications and the possibility of suicide and who knows what else... If someone could prove to me that she was not BiPolar (BP)... and Autistic, I might be happier. I know she might still need some medications...but. But I don't know someone with an Autistic child might feel the opposite? The suicide is always haunting me...I would rather take all of the diagnosis's away...</p><p></p><p>I just don't know what these psychiatrist's saw or didn't see or were oblivious to? </p><p></p><p>As a parent what could those of you who did have diagnosis's changed could have done differently? If anything? Could you have seen it before hand? Did you know deep down inside? </p><p>Do you feel like the diagnosis is accurate now? Are there any of you out there that think your child's diagnosis is wrong????</p></blockquote><p></p>
[QUOTE="totoro, post: 88546, member: 3155"] So reading some of your histories like MWM and SRL and Sara PA and Janna as well as a bunch of others... I am sitting here thinking OK we all seem intelligent. Although how much did we know in the beginning? What were the missteps in getting a missed diagnosis for some of you... how do we know if it is accurate if people like Janna can go through all of this and then get the diagnosis changed, does this also involve a changing child/hormones etc. Does this just happen sometimes? When we were starting, not very long ago, it has been a little over a year since we have honestly been looking for answers. The one Psychologist, who specialised in Autism, gave K the Pervasive Developmental Disorder (PDD)-not otherwise specified diagnosis, without barely talking to us, he gave us a shortened Vineland scale... never met K at that point. Told us she would need to be on Risperdal.He also told us she didn't need a psychiatrist! I was like what in the He11 are you talking about? He then went on to explain that the diagnosis really didn't matter, but to take his diagnosis because it would get us into the special services faster and easier!?!? Little did I know he was right!!! Ethical or moral maybe not, but he was right... and I don't believe she was or is truly in the spectrum, or at least that is not her biggest problem... She is basically textbook BiPolar (BP) from what the author of the Bipolar Child and psychiatrist1(From Chicago) have said...The author of The Bipolar Child said her symptoms present as a textbook BiPolar (BP) case... But psychiatrist1 saw her unmedicated... now psychiatrist3 has only seen her medicated. She is a different child medicated. He has taken his time to get comfortable with the diagnosis, I think he was trying to treat the ADHD first and now he sees that it is much more than that... I guess I am just wondering do most of you feel comfortable with your diagnosis's? What if it was changed tommorow? For me N seems more on the Spectrum right now than BiPolar (BP)... She may even just have sensory stuff and very high functioning Autism? But like SRL we have adapted our lives and home... alot of people don't get it, but they don't live it! I just am wondering out loud here... I mean I have the history... the family, myself... K presented all of the symptoms, even with the voices, those came out on their own, she brought those up herself, no-one prodded her. Her talk of wanting to die has been most times not during a rage, just slowly sinks into despair and depression... she has had the violent talk of dying also. When I think of myself as a kid and read the BiPolar (BP) books it is all so clear... scary but clear. And K is so much like me and the books, I wish she wasn't. I don't know which diagnosis is "better". For me to see all of the medications and the possibility of suicide and who knows what else... If someone could prove to me that she was not BiPolar (BP)... and Autistic, I might be happier. I know she might still need some medications...but. But I don't know someone with an Autistic child might feel the opposite? The suicide is always haunting me...I would rather take all of the diagnosis's away... I just don't know what these psychiatrist's saw or didn't see or were oblivious to? As a parent what could those of you who did have diagnosis's changed could have done differently? If anything? Could you have seen it before hand? Did you know deep down inside? Do you feel like the diagnosis is accurate now? Are there any of you out there that think your child's diagnosis is wrong???? [/QUOTE]
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