This post is JUST about the neuro visit. As I said, I really like the new doctor. We thought we were getting the woman in the practice, but she had a weekend emergency with a patient so we got her partner. He is great. He took a VERY careful history. Did a far more thorough neurological exam than I have ever seen done. She did have the shaking thing happen during the exam, so he saw it first hand. There is NO way it could be a seizure. Not just based on the EEG, but also because she is walking and talking and conscious during the episodes. He then asked why we were on keppra and what we tried before that. According to this neuro there is only one study he knows of where topomax, the medication we tried before keppra, helped absence epilepsy and it was not very effective. There are no studies he is aware of that show keppra helping the epilepsy. Since there ARE medications that are proven to help, it seems strange to stick with these 2 medications that do not have any research to prove they work. He ordered 6 panels of lab work. Not 6 tests, 6 panels. He covered just about everything, including a rheumatoid panel. We have long since seen signs that she has some rheumatoid problems. Since they are so strong in the family it seems dumb to rule that no doctor before this would order these tests. He has not ever seen anything like this. But he is NOT giving up. He is frustrated that our pediatrician refuses to do anything to help us after we saw the neuro. Not even medication refills, which he thinks she could do with the info he has. She will treat sinus problems, the flu, etc... Even with a letter or conversation with him she wants nothing to do with this and will not even refill a prescription at his request. So he wrote her rx's for 3 medications. We are staying on the keppra for now. he added lyrica to help with the pain, and continued her soma for the msuscle spasms. In addition to the lab work he wants an MRI with sedation. It will be of her brain, of course, and should let us know if there are any problems in the brain itself. The sedation is because she couldn't lay still for the test with the shaking. We go back in 6 weeks. So that is the in-depth update of the doctor appointment. Thanks to ALL of you for helping us get this far.