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Just another stressy thing
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<blockquote data-quote="nerfherder" data-source="post: 592925" data-attributes="member: 15907"><p>In a reply elsewhere I noted how much I hate hope.</p><p></p><p>Well, here's something that might pan out, or might not.</p><p></p><p>Yesterday I called my mom's local Federation of Jewish Agencies, and talked to her Holocaust Survivor Services caseworker. We discussed the issues she has, the changes she needs, and what we can set up to make her life easier - she doesn't have the energy to prepare food anymore, there isn't a Kosher Meals On Wheels program (spoke to Mom this morning, she's going to be set up with the Vegetarian Meals on Wheels plan.) </p><p></p><p>So I mentioned (to clarify) that one reason we left her county years ago was the really crappy services for developmental/autistic kids both in school and through the Regional Center. She asked a few questions about Kiddo, developmental level and so on, and said "I'm getting goose bumps here. We're opening a home for Jewish kids with developmental delays out here, there will be room for six." </p><p></p><p>Have I mentioned how much I hate hope?</p><p></p><p>So we went back and forth on that a bit, and I started the email trail this morning. Ms. C is forwarding my contact info and what she knows about Kiddo to the program's director, I've forwarded more contact info on to Kiddo's caseworker here, and there's a meeting on the 8th to get started on the Guardianship paperwork and who to contact and who's butt to kiss, and all that.</p><p></p><p>I told Blacksmith about it, after being in that stressed grinding daze for a couple hours, and he said "You're going to play the Dachau card HARD, right?"</p><p></p><p>I answered "Oh, you KNOW it." </p><p></p><p>Sure, it may be gaming the system to squeeze Kiddo in just because of who I'm related to, who we know, what we know, etc - but honestly, I don't care anymore. One of the earliest lessons I got from another parent was "Look. You feel bad for the other kids and the other moms and dads too, and that's empathy. Empathy is good. But caseworkers and anyone dealing with limited funding will try and use that to keep Kiddo from getting as much services as you want, and you have to NOT FALL INTO THAT TRAP. You are your child's best advocate, sometimes her ONLY advocate, and you can't let people talk you into cutting down what she needs because 'other kids need this too.'"</p><p></p><p>Thank you all for your advice and thoughts. I'll bring up the neuro possibilities at the meeting on the 8th.</p><p></p><p>But some detail first. When you hear what Kiddo's got going on and think "possible neuro involvement" What exactly are you seeing there? I'd like some details or keywords so I can start digging into the Web and find enough medbabble and psychobabble to play chess with.</p></blockquote><p></p>
[QUOTE="nerfherder, post: 592925, member: 15907"] In a reply elsewhere I noted how much I hate hope. Well, here's something that might pan out, or might not. Yesterday I called my mom's local Federation of Jewish Agencies, and talked to her Holocaust Survivor Services caseworker. We discussed the issues she has, the changes she needs, and what we can set up to make her life easier - she doesn't have the energy to prepare food anymore, there isn't a Kosher Meals On Wheels program (spoke to Mom this morning, she's going to be set up with the Vegetarian Meals on Wheels plan.) So I mentioned (to clarify) that one reason we left her county years ago was the really crappy services for developmental/autistic kids both in school and through the Regional Center. She asked a few questions about Kiddo, developmental level and so on, and said "I'm getting goose bumps here. We're opening a home for Jewish kids with developmental delays out here, there will be room for six." Have I mentioned how much I hate hope? So we went back and forth on that a bit, and I started the email trail this morning. Ms. C is forwarding my contact info and what she knows about Kiddo to the program's director, I've forwarded more contact info on to Kiddo's caseworker here, and there's a meeting on the 8th to get started on the Guardianship paperwork and who to contact and who's butt to kiss, and all that. I told Blacksmith about it, after being in that stressed grinding daze for a couple hours, and he said "You're going to play the Dachau card HARD, right?" I answered "Oh, you KNOW it." Sure, it may be gaming the system to squeeze Kiddo in just because of who I'm related to, who we know, what we know, etc - but honestly, I don't care anymore. One of the earliest lessons I got from another parent was "Look. You feel bad for the other kids and the other moms and dads too, and that's empathy. Empathy is good. But caseworkers and anyone dealing with limited funding will try and use that to keep Kiddo from getting as much services as you want, and you have to NOT FALL INTO THAT TRAP. You are your child's best advocate, sometimes her ONLY advocate, and you can't let people talk you into cutting down what she needs because 'other kids need this too.'" Thank you all for your advice and thoughts. I'll bring up the neuro possibilities at the meeting on the 8th. But some detail first. When you hear what Kiddo's got going on and think "possible neuro involvement" What exactly are you seeing there? I'd like some details or keywords so I can start digging into the Web and find enough medbabble and psychobabble to play chess with. [/QUOTE]
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