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Just dumbfounded...need any advice/help
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<blockquote data-quote="Marguerite" data-source="post: 47620" data-attributes="member: 1991"><p>That's our current beef as well - pediatrician insists easy child 2/difficult child 2 is not Aspie, because he says her eye contact is fine. No tests, nothing. Just his opinion. Increasingly, we're seeing problems which should be long in the past, where she's just not coping because life is too challenging, people are too hard to cope with.</p><p></p><p>In your case - the test is paid for, should have been done. If the neuropsychologist says there's no need, point out that the referring doctor wants it done and to ensure a complete, THOROUGH evaluation, it needs to be done.</p><p></p><p>Something to consider - you may not have been billed for this test. Three hours of testing can still be insufficient for a full battery of tests. Be prepared to be charged even more, for this extra test.</p><p></p><p>If you chose to go elsewhere to continue the assessment, you should be able to ask for test results already done to be forwarded to another specialist, for them to analyse. To re-test too soon (such as within two years) is just plain wrong, should never be done. A change in doctor should also mean a reanalysis of test results, not necessarily retesting. They should ALWAYS check how long since the last tests, before doing it again.</p><p></p><p>That was one of our beefs with difficult child 3 - he had been tested halfway through Year 5 by an independent research team. The test results and copy of the report were sent to the school counsellor, who tested him again, without my knowledge or permission, early in Year 6. When I t old her that this was inappropriate because it was too soon after his previous test, she said, "What test?"</p><p>I said, "If you had asked my permission to test him again this time, I would have reminded you about last year's test, the results of which should be in his file and which I handed to you personally." (which could be why the test results aren't in his file!)</p><p></p><p>Too-frequent testing is badly biased - the subject gets really good at remembering the questions and often in the meantime has checked up on the answers. We have a software package called "Boost your IQ" (came with a bundle of stuff) and the more you test yourself, the more you can remember previous correct answers. I fairly quickly got to the 100% correct stage (allegedly equal to IQ of 200 - I doubt it!).</p><p></p><p>It's a blasted nuisance that you have to wait for testing to be done properly, after all your careful organisation. I would suggest you work on the assumptions of the referring doctor - if he requested Pervasive Developmental Disorder (PDD) to be considered, then the IEP needs to provisionally consider it. When school goes back you will have a more official report which can then be used to modify the IEP (if that is needed). Meanwhile, you can put in place as much as possible, given the SNAFU which is NOT your fault and for which difficult child should not be penalised.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 47620, member: 1991"] That's our current beef as well - pediatrician insists easy child 2/difficult child 2 is not Aspie, because he says her eye contact is fine. No tests, nothing. Just his opinion. Increasingly, we're seeing problems which should be long in the past, where she's just not coping because life is too challenging, people are too hard to cope with. In your case - the test is paid for, should have been done. If the neuropsychologist says there's no need, point out that the referring doctor wants it done and to ensure a complete, THOROUGH evaluation, it needs to be done. Something to consider - you may not have been billed for this test. Three hours of testing can still be insufficient for a full battery of tests. Be prepared to be charged even more, for this extra test. If you chose to go elsewhere to continue the assessment, you should be able to ask for test results already done to be forwarded to another specialist, for them to analyse. To re-test too soon (such as within two years) is just plain wrong, should never be done. A change in doctor should also mean a reanalysis of test results, not necessarily retesting. They should ALWAYS check how long since the last tests, before doing it again. That was one of our beefs with difficult child 3 - he had been tested halfway through Year 5 by an independent research team. The test results and copy of the report were sent to the school counsellor, who tested him again, without my knowledge or permission, early in Year 6. When I t old her that this was inappropriate because it was too soon after his previous test, she said, "What test?" I said, "If you had asked my permission to test him again this time, I would have reminded you about last year's test, the results of which should be in his file and which I handed to you personally." (which could be why the test results aren't in his file!) Too-frequent testing is badly biased - the subject gets really good at remembering the questions and often in the meantime has checked up on the answers. We have a software package called "Boost your IQ" (came with a bundle of stuff) and the more you test yourself, the more you can remember previous correct answers. I fairly quickly got to the 100% correct stage (allegedly equal to IQ of 200 - I doubt it!). It's a blasted nuisance that you have to wait for testing to be done properly, after all your careful organisation. I would suggest you work on the assumptions of the referring doctor - if he requested Pervasive Developmental Disorder (PDD) to be considered, then the IEP needs to provisionally consider it. When school goes back you will have a more official report which can then be used to modify the IEP (if that is needed). Meanwhile, you can put in place as much as possible, given the SNAFU which is NOT your fault and for which difficult child should not be penalised. Marg [/QUOTE]
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