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K is off of medications...
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<blockquote data-quote="SRL" data-source="post: 132681" data-attributes="member: 701"><p>difficult child was on an SSRI about the time he was K's age. After 9 months we wound up pulling it due to side effects and found that even that much time made a big improvement in his ability to apply coping skills for anxiety. That held until he started all day first grade and what that even worse medication experience made us do was decide we would go to great lengths and endure a great deal before going that route again. (Sibs were seriously begging us not to put him on medications again).</p><p> </p><p>I know we're talking a different child, and different diagnosis, but the treatment was worse than the cure in those few experiences of ours. It took a full year for all the negative behavioral side effects of having an anxiety crash combined with medication reaction to settle down and get back to "just difficult child". It was probably 6 more months before he started making forward progress from that baseline. Especially in the early months it felt like we were taking the long steep road and I would have paid a whole lot for that one magic pill to give him and our family some relief. </p><p> </p><p>difficult child's been medication free for 5 years now. I'm not bashing medications and am not closing the door on future use, but I'm really glad we did what we did and give him a good long period to undo the damage done by the combination of the medication and the emotional experience he'd been through. I won't kid you--it's been a ton of money and a lot of work. We set up the sensory gym in the basement right around then and our lives were pretty much given over to keeping him calm and basic family functions. But it's worked...so far. We kept up a relationship with a doctor able to prescribe for him for another year or so but we don't even have that anymore.</p><p> </p><p>You might try bringing a gel ball along to restraunts if she can tolerate the texture. If heat is a comfort a baby sized hotwater bottle or microwave heat disc. Simple things can be a whole lot of help for some kids.</p></blockquote><p></p>
[QUOTE="SRL, post: 132681, member: 701"] difficult child was on an SSRI about the time he was K's age. After 9 months we wound up pulling it due to side effects and found that even that much time made a big improvement in his ability to apply coping skills for anxiety. That held until he started all day first grade and what that even worse medication experience made us do was decide we would go to great lengths and endure a great deal before going that route again. (Sibs were seriously begging us not to put him on medications again). I know we're talking a different child, and different diagnosis, but the treatment was worse than the cure in those few experiences of ours. It took a full year for all the negative behavioral side effects of having an anxiety crash combined with medication reaction to settle down and get back to "just difficult child". It was probably 6 more months before he started making forward progress from that baseline. Especially in the early months it felt like we were taking the long steep road and I would have paid a whole lot for that one magic pill to give him and our family some relief. difficult child's been medication free for 5 years now. I'm not bashing medications and am not closing the door on future use, but I'm really glad we did what we did and give him a good long period to undo the damage done by the combination of the medication and the emotional experience he'd been through. I won't kid you--it's been a ton of money and a lot of work. We set up the sensory gym in the basement right around then and our lives were pretty much given over to keeping him calm and basic family functions. But it's worked...so far. We kept up a relationship with a doctor able to prescribe for him for another year or so but we don't even have that anymore. You might try bringing a gel ball along to restraunts if she can tolerate the texture. If heat is a comfort a baby sized hotwater bottle or microwave heat disc. Simple things can be a whole lot of help for some kids. [/QUOTE]
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