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<blockquote data-quote="susiestar" data-source="post: 405929" data-attributes="member: 1233"><p>I am sorry. This is the wait for almost any specialist here. When Jess had the supposed heart problems a few years back they gave us paperwork to get a defibrillator paid for by insurance but we couldn't see the pediatrician cardio for 3 mos while the diagnosis they gave us meant her heart could stop at any point if seh didn't have medications. We were told to keep her home from school until she saw the cardio doctor. I was furious and terrified!! Our pediatrician got us in for a check in a couple days, thankfully, and it was all a mistake because the test was done wrong, but the wait was crazy.</p><p> </p><p>Often the waiting lists can be influenced if you know the right people. Get online and look up your state representatives to state AND federal gov't. Then start calling them for help - this is an URGENT need that is possibly life threatening if she cannot get help to make sure the phobia doesn't push her to stop eating again. </p><p> </p><p>It is pretty amazing what having a Rep or Senator helping you can do to get help with services like this. Also look up the state dept that oversees the program. Find out who is in charge and ask them what to do and how to do it to get help. Don't get angry, yell or threaten. Crying is often MUCH more helpful, esp when they try to say they cannot do "anything". It makes them feel like they are heartless and cold to the plight of a sick child, where anger makes them defensive and angry. Don't cry at first, but if you keep not getting results then it can be a big help.</p></blockquote><p></p>
[QUOTE="susiestar, post: 405929, member: 1233"] I am sorry. This is the wait for almost any specialist here. When Jess had the supposed heart problems a few years back they gave us paperwork to get a defibrillator paid for by insurance but we couldn't see the pediatrician cardio for 3 mos while the diagnosis they gave us meant her heart could stop at any point if seh didn't have medications. We were told to keep her home from school until she saw the cardio doctor. I was furious and terrified!! Our pediatrician got us in for a check in a couple days, thankfully, and it was all a mistake because the test was done wrong, but the wait was crazy. Often the waiting lists can be influenced if you know the right people. Get online and look up your state representatives to state AND federal gov't. Then start calling them for help - this is an URGENT need that is possibly life threatening if she cannot get help to make sure the phobia doesn't push her to stop eating again. It is pretty amazing what having a Rep or Senator helping you can do to get help with services like this. Also look up the state dept that oversees the program. Find out who is in charge and ask them what to do and how to do it to get help. Don't get angry, yell or threaten. Crying is often MUCH more helpful, esp when they try to say they cannot do "anything". It makes them feel like they are heartless and cold to the plight of a sick child, where anger makes them defensive and angry. Don't cry at first, but if you keep not getting results then it can be a big help. [/QUOTE]
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