leading nowhere as usual

[Ktllc]

I am so frustrated right now... I have called every reputable audiology places in NC and NOBODY will test Victor for Central Auditory Processing Disorder (CAPD).
I saw V's pediatrician yesterday (unrelated issue) and we talked a bit about Central Auditory Processing Disorder (CAPD) and resources (or lack of). She then said Autism might be the answer to V's issues! I told her that it had been ruled out by a psychologist (master degree, ADOS testing), and she told me that it is very easy to miss Asperger or High functioning autism in a 4 year old. It won't be obvious until V turns 7 or 8.
So now it seems like the only thing I have to fight the school district is our Speech Language Pathologist (SLP) who agreed to come to the IEP meeting (yeah!) and Occupational Therapist (OT) who will also join us (for sensory issues that are not even recognized by school...).
And the irony is V did not do bad on the speech testing but our Speech Language Pathologist (SLP) used his clinical judgement. He knew something was "off" and the test was not showing it. I doubt the school team will have the same approach!
I have sent a packet to a group in NC who does state of the art research and treatment for Autism Spectrum Disorders (ASD). I can't name them, but they are supposed to be top notch. There is a 1 year waiting list but if V was to get there help, they would use all kind of approaches to help him succeed in school and life. Kind of we attack the problem on EVERY angle in EVERY setting of life.
It is hard enough enough to have a child with issues, why does the rest of the world have to make it any harder by denying the problems with their wait and see approach???

 

[InsaneCdn]

K - the school Speech Language Pathologist (SLP) should be able to screen for Central Auditory Processing Disorder (CAPD) and other APDs. Here - you HAVE to start with that, no audiology specialist will touch you without. Since the Speech Language Pathologist (SLP) is "on-side" anyway... what would it take for HER to screen? Could she do that on her own time and you pay her for it? (that IS allowed here... the SD even supports it, because the staff use their private cases to expand the age range of clients... keeps their skills fresher) If she can't, can she recommend an Speech Language Pathologist (SLP) who CAN do the screening?

 

[Malika]

Hi ktllc. Hope your family is doing well as a whole. I have to say I admire, yet again, your tenacity and hard work in getting all the help for V that you can. I can only say that I understand the frustration of people's wait and see approach... You've taken a great step, it seems to me, in trying to get taken on by this group that specialises in Autism Spectrum Disorders (ASD). Even if it takes a year, it sounds like it is worth the wait if he can get taken on by them and really sort out this issue of whether he is autistic or not and if so what interventions can be offered to best effect. Not that it will make you feel any better, but believe me you've got a lot more going on in terms of help in your part of the world... Bon courage.

 

[BusynMember]

My daughter was diagnosed with auditory and visual processing deficits through regular neuropsychologist testing. I'm not sure you need to just test for that...I think it comes out in the process of regular testing...

Good luck.

 

[InsaneCdn]

MWM - I think it depends on how good your neuropsychologist is... or any evaluator. If they know about this stuff and believe in the causes and effects... they test. Otherwise? nothing.

 

[buddy]

So, if your doctor said that, would he be willing to give a medical diagnosis of Aspergers/Autism Spectrum Disorders (ASD)??? That would be a great thing to have. You will likely have to wait till he is 7 or 8 for the Central Auditory Processing Disorder (CAPD) stuff but still having the Speech Language Pathologist (SLP) explain there ARE processing problems it should be a huge help. IF they tell you they MUST have standardized tests, they actually can do a team override based on evidence and clinical judgement and how the child is displaying behaviors etc. So, ask them about a team override if they object.

In the mean time, therapy for language processing, social skills groups for kids with autism types of issues, Occupational Therapist (OT), etc.... I hope you can find help for those things.

 

[Nikki88]

I'm not really sure of the rules of the board, but can you message the place you are talking about, we are also in NC and I am curious to know

 

[buddy]

I'm not really sure of the rules of the board, but can you message the place you are talking about, we are also in NC and I am curious to know

from what I have seen you did the perfect thing... we can tell each other things like that through PM so you did great.

 

[Ktllc]

Our Speech Language Pathologist (SLP) advise: educate myself as much as possible and implement Central Auditory Processing Disorder (CAPD) methods into our lives. He also wonders what else could be going on...
So now, even Speech Language Pathologist (SLP) thinks something else is going on!!
Serioulsy, is the plan to just drive me crazy???
V is so inconsistent in his abilities: one day he does a task with no problem, the next day it is impossible for him. That relates to his every day living, Occupational Therapist (OT) therapy and now speech therapy.
And I know he does not control it.