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<blockquote data-quote="Calgon_Take_Me_Away" data-source="post: 212030" data-attributes="member: 5645"><p>Thanks for your comments Adrianne.</p><p> </p><p>Several times the nurses have told me they can transport him to his dr appts ~ I understand that, but at the same time, allergies and ears are things I have been dealing with- his whole life. I have the knowledge about him that they lack ~ and also according to the nurses, mom can get things done that they can't. For example, during his flare season our allergist said to increase his nose spray to twice a day ~ their dr wouldn't give them permission to do that so when I took him to their dr, I said this is what we needed to do and he approved it. He also gave them a bottle of phenergan with- codeine to keep on hand per my request. His ears are just another battle. He doesn't feel them full or hurting and doesn't know they have even perforated until pus is draining from them. He's had 3 sets of tubes and a 4th surgery to repair the hole in the left eardrum. He'll flatline every school hearing test because of the scar tissue from perforating and tubes.</p><p> </p><p>I'm the type of person who doesn't like candy coating reality. Tell me like it is because I also plan to do the same. If his behaviors weren't good at home, I'll tell you so. In the Residential Treatment Center (RTC) parent handbook they say to feel free to discipline your child as needed ~ well you can't do that if you don't know what's going on.</p><p> </p><p>Last night his dorm supervisor called to see what kids were going home for Thanksgiving. I mentioned according to the therapist, his behaviors haven't been too good. He replied that for difficult child, they were bad behaviors because difficult child came to Residential Treatment Center (RTC) keeping his barrier in tact for 6 weeks and his behaviors aren't constant. For other kids in the Residential Treatment Center (RTC), they came showing their behaviors and are a constant. I told supervisor that the home visit would depend on difficult child's behaviors, but to plan on him coming home so they can get medications ordered. I told difficult child last night as well that if he couldn't keep his behaviors in check, then he wouldn't be coming home for Thanksgiving. He replied, he'll be good so he can come home.</p></blockquote><p></p>
[QUOTE="Calgon_Take_Me_Away, post: 212030, member: 5645"] Thanks for your comments Adrianne. Several times the nurses have told me they can transport him to his dr appts ~ I understand that, but at the same time, allergies and ears are things I have been dealing with- his whole life. I have the knowledge about him that they lack ~ and also according to the nurses, mom can get things done that they can't. For example, during his flare season our allergist said to increase his nose spray to twice a day ~ their dr wouldn't give them permission to do that so when I took him to their dr, I said this is what we needed to do and he approved it. He also gave them a bottle of phenergan with- codeine to keep on hand per my request. His ears are just another battle. He doesn't feel them full or hurting and doesn't know they have even perforated until pus is draining from them. He's had 3 sets of tubes and a 4th surgery to repair the hole in the left eardrum. He'll flatline every school hearing test because of the scar tissue from perforating and tubes. I'm the type of person who doesn't like candy coating reality. Tell me like it is because I also plan to do the same. If his behaviors weren't good at home, I'll tell you so. In the Residential Treatment Center (RTC) parent handbook they say to feel free to discipline your child as needed ~ well you can't do that if you don't know what's going on. Last night his dorm supervisor called to see what kids were going home for Thanksgiving. I mentioned according to the therapist, his behaviors haven't been too good. He replied that for difficult child, they were bad behaviors because difficult child came to Residential Treatment Center (RTC) keeping his barrier in tact for 6 weeks and his behaviors aren't constant. For other kids in the Residential Treatment Center (RTC), they came showing their behaviors and are a constant. I told supervisor that the home visit would depend on difficult child's behaviors, but to plan on him coming home so they can get medications ordered. I told difficult child last night as well that if he couldn't keep his behaviors in check, then he wouldn't be coming home for Thanksgiving. He replied, he'll be good so he can come home. [/QUOTE]
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