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General Parenting
Long long road, still not full diagnosis on 4 year old boy...
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<blockquote data-quote="OrganizedChaos" data-source="post: 454838" data-attributes="member: 12670"><p>Thanks again for the replies! Much appreciated. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> In answer...</p><p></p><p>Yes, he gets speech therapy 2-3 times per week (he just had it this morning, in fact. He wouldn't settle for her, though; he kept throwing the things she'd get out to work with.) His hearing is approximately 95% with the hearing aids. He wears the aids all the time except for sleeping and bathing/swimming. He loves to take them out all the time and throw them but he keeps them in for the most part. </p><p></p><p>At his last appointment a couple of weeks ago, the university hospital doctor that he sees for the hearing/aids said that since he's had them since February and has made no improvements to the behavior that it's likely not a hearing issue and that there's something else going on. I have talked to plenty of parents who have hearing impaired children and while they do sometimes act out, it's not to the degree and frequency that my son is. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown :(" loading="lazy" data-shortname=":(" /></p><p></p><p>I have asked the birth mother several times (as has her mother) if she drank or did any drugs. She always says no and I have nothing else to go on but her word.</p><p></p><p>He got his proper hearing aids just before his 4th birthday this year (he's had them since February). The 6 months prior, when he had the aids before, they weren't set properly so they weren't doing him any good. Please understand that we weren't just sitting idly by knowing our child couldn't hear. Because he would "respond" to noises/talking, teachers and doctors both said he was stubborn/lazy/etc. It wasn't *obvious* that he couldn't hear, honestly. When he looks toward a noise you make or somebody talking, you assume that he can hear. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> Then, because of our insurance, we have to go through what I like to un-lovingly refer to as "referral hell" to get anything done. And then we were further behind because of the improper hearing aids. It's really been a long road just to get to this point with the poor guy. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown :(" loading="lazy" data-shortname=":(" /></p><p></p><p>He knows basic baby sign language. We were teaching him that way before we even knew this (though he didn't pick it up). And now, he knows the signs for: More, please, thank you, eat, drink, cat, help, potty, no, yes, stop. Those are the basics that he knows but he generally only uses them when prompted. (i.e. "Son, are you hungry? Do you want to eat?" And then he signs eat.) He doesn't come up to us and sign eat or anything, really. He did "potty" without prompting for a while but he's since backslid on that and isn't asking to go anymore (though if we prompt he'll sign it and if we take him he'll usually go). University hospital said not to do sign language anymore but we and the speech therapist agreed that we would continue it. I'm sorry that I didn't put this in my original post, I was trying to remember everything! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p></p><p>I absolutely agree with you about the sleep! And we've learned in the last year and a half that we have to push push push for everything so we'll be push push pushing to get this sleep thing figured out and handled. We are currently in "referral hell". We can't do a thing with our insurance without a referral. For speech therapy I literally called the office every single day. They didn't like me at all. The feeling was becoming mutual. :-\</p><p></p><p>We have been finally getting somewhere with resources for him. Many more to go but things are now moving in the right direction. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p></p><p>I think that's everything. Thank you for the warm welcomes. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p></blockquote><p></p>
[QUOTE="OrganizedChaos, post: 454838, member: 12670"] Thanks again for the replies! Much appreciated. :) In answer... Yes, he gets speech therapy 2-3 times per week (he just had it this morning, in fact. He wouldn't settle for her, though; he kept throwing the things she'd get out to work with.) His hearing is approximately 95% with the hearing aids. He wears the aids all the time except for sleeping and bathing/swimming. He loves to take them out all the time and throw them but he keeps them in for the most part. At his last appointment a couple of weeks ago, the university hospital doctor that he sees for the hearing/aids said that since he's had them since February and has made no improvements to the behavior that it's likely not a hearing issue and that there's something else going on. I have talked to plenty of parents who have hearing impaired children and while they do sometimes act out, it's not to the degree and frequency that my son is. :( I have asked the birth mother several times (as has her mother) if she drank or did any drugs. She always says no and I have nothing else to go on but her word. He got his proper hearing aids just before his 4th birthday this year (he's had them since February). The 6 months prior, when he had the aids before, they weren't set properly so they weren't doing him any good. Please understand that we weren't just sitting idly by knowing our child couldn't hear. Because he would "respond" to noises/talking, teachers and doctors both said he was stubborn/lazy/etc. It wasn't *obvious* that he couldn't hear, honestly. When he looks toward a noise you make or somebody talking, you assume that he can hear. :) Then, because of our insurance, we have to go through what I like to un-lovingly refer to as "referral hell" to get anything done. And then we were further behind because of the improper hearing aids. It's really been a long road just to get to this point with the poor guy. :( He knows basic baby sign language. We were teaching him that way before we even knew this (though he didn't pick it up). And now, he knows the signs for: More, please, thank you, eat, drink, cat, help, potty, no, yes, stop. Those are the basics that he knows but he generally only uses them when prompted. (i.e. "Son, are you hungry? Do you want to eat?" And then he signs eat.) He doesn't come up to us and sign eat or anything, really. He did "potty" without prompting for a while but he's since backslid on that and isn't asking to go anymore (though if we prompt he'll sign it and if we take him he'll usually go). University hospital said not to do sign language anymore but we and the speech therapist agreed that we would continue it. I'm sorry that I didn't put this in my original post, I was trying to remember everything! :) I absolutely agree with you about the sleep! And we've learned in the last year and a half that we have to push push push for everything so we'll be push push pushing to get this sleep thing figured out and handled. We are currently in "referral hell". We can't do a thing with our insurance without a referral. For speech therapy I literally called the office every single day. They didn't like me at all. The feeling was becoming mutual. :-\ We have been finally getting somewhere with resources for him. Many more to go but things are now moving in the right direction. :) I think that's everything. Thank you for the warm welcomes. :) [/QUOTE]
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Long long road, still not full diagnosis on 4 year old boy...
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