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Lunch with Mom/Aunt, and new medication for Jess
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<blockquote data-quote="susiestar" data-source="post: 379804" data-attributes="member: 1233"><p>I have taken zanaflex in the past and the docs told me that they used it with the football players and basketball players a lot (I was seeing a doctor at the univ health center then.). THey told me to make sure I was close to a bed and didn't have to do anything for about 8 hrs when I took it. It knocked me out and that was just the 2 mg. </p><p> </p><p>We cut some in half for Jess to take at first. It helped the muscles some, but it made her tired enough to be really on edge, unable to cope with anything. As a toddler she would sometimes get tired to the point that everything that bothered her was a huge catastrophe and major crisis. She was like this with the half dose (half of a 4 mg tablet). I usually start either of us on half of whatever is rx'd because sometimes we react really oddly. She is now taking the 4 mg dose and it makes her tired enough to sleep. It also helps her muscles not hurt as much. </p><p> </p><p>I am just concerned because if we follow the doctor's directions she will be taking 8 mgs (two of the 4 mg tabs) every 8 hrs. I have not ever heard of anyone taking that much and neither has the pharmacy. The doctor gave her 180 pills for a month so he must mean for her to take it that way. The pharmacist apparently refused to fill it at first until the doctor not only faxed another copy but also got on the phone himself to give the directions. usually they just confirm by fax, but this time the pharmacist wanted to speak to the doctor in person. Even refused to take the nurse's work for it. I got a less that cordial message on my voicemail about how the doctor doesn't like being questioned by a pharmacist, but he actually said an $8/hr employee with no idea of what medications do has no right to insist on wasting his time and that I need to get them under control before I need any more medications for Jess. The nurse apologized for him when I called back - esp after I said that the person who called was NOT a pharmacy tech but was a pharmacist with a Ph.D and 25 years of experience. I played the message for the pharmacist and he sent a note to the doctor to try to smooth the waters. </p><p> </p><p>None of us meant to say the doctor didn't know what he was doing, we just don't want to give Jess and overdose. Although I am not too sure he does know what he is doing, I won't say it to his face.</p><p> </p><p>I seriously doubt I will be giving Jess 8 mgs of this medication. She is tolerating the 4 mg dose fairly well - sleeping about 5-6 hours after each dose, but she really needs sleep. We may go up to taking it every 8 hrs IF she is awake more after a week or two. I just don't plan to tell the doctor because he stops listening after the third or fourth word you say. </p><p> </p><p>8 mgs of this is more than I have heard of anyone taking at once. I am surprised the insurance paid for it.</p><p> </p><p>Thanks everyone!</p><p> </p><p>Janet, the first time I read your post about Billie and her mom I thought you gave the medications to Billie!! My mind boggled at it! I am surprised her mom was even awake. We have football players who take 2 mgs and cannot walk ten minutes after they take it!</p><p> </p><p>hugs.</p></blockquote><p></p>
[QUOTE="susiestar, post: 379804, member: 1233"] I have taken zanaflex in the past and the docs told me that they used it with the football players and basketball players a lot (I was seeing a doctor at the univ health center then.). THey told me to make sure I was close to a bed and didn't have to do anything for about 8 hrs when I took it. It knocked me out and that was just the 2 mg. We cut some in half for Jess to take at first. It helped the muscles some, but it made her tired enough to be really on edge, unable to cope with anything. As a toddler she would sometimes get tired to the point that everything that bothered her was a huge catastrophe and major crisis. She was like this with the half dose (half of a 4 mg tablet). I usually start either of us on half of whatever is rx'd because sometimes we react really oddly. She is now taking the 4 mg dose and it makes her tired enough to sleep. It also helps her muscles not hurt as much. I am just concerned because if we follow the doctor's directions she will be taking 8 mgs (two of the 4 mg tabs) every 8 hrs. I have not ever heard of anyone taking that much and neither has the pharmacy. The doctor gave her 180 pills for a month so he must mean for her to take it that way. The pharmacist apparently refused to fill it at first until the doctor not only faxed another copy but also got on the phone himself to give the directions. usually they just confirm by fax, but this time the pharmacist wanted to speak to the doctor in person. Even refused to take the nurse's work for it. I got a less that cordial message on my voicemail about how the doctor doesn't like being questioned by a pharmacist, but he actually said an $8/hr employee with no idea of what medications do has no right to insist on wasting his time and that I need to get them under control before I need any more medications for Jess. The nurse apologized for him when I called back - esp after I said that the person who called was NOT a pharmacy tech but was a pharmacist with a Ph.D and 25 years of experience. I played the message for the pharmacist and he sent a note to the doctor to try to smooth the waters. None of us meant to say the doctor didn't know what he was doing, we just don't want to give Jess and overdose. Although I am not too sure he does know what he is doing, I won't say it to his face. I seriously doubt I will be giving Jess 8 mgs of this medication. She is tolerating the 4 mg dose fairly well - sleeping about 5-6 hours after each dose, but she really needs sleep. We may go up to taking it every 8 hrs IF she is awake more after a week or two. I just don't plan to tell the doctor because he stops listening after the third or fourth word you say. 8 mgs of this is more than I have heard of anyone taking at once. I am surprised the insurance paid for it. Thanks everyone! Janet, the first time I read your post about Billie and her mom I thought you gave the medications to Billie!! My mind boggled at it! I am surprised her mom was even awake. We have football players who take 2 mgs and cannot walk ten minutes after they take it! hugs. [/QUOTE]
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Lunch with Mom/Aunt, and new medication for Jess
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