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<blockquote data-quote="witzend" data-source="post: 351192" data-attributes="member: 99"><p>Thanks for the ideas, Star. Sadly, we don't have MS. We have MD. It's not at all the same. When we try to build our affected muscles we permanently destroy them. We don't ever recover anything the way that people with MS can from time to time in their lives. Since the muscles affected are very specific, you can't really just exercise one part of your body, because the affected muscles run throughout out bodies alongside unaffected muscles. There is no treatment and no cure for our MD, and the best we can do is to stay stretched to keep our muscles from in essence hardening. The resistance type exercise you mentioned would be brutally painful and damaging for us.</p><p></p><p>I'm not at all interested in getting that involved in his stuff. Just the phone conversations that I have been having with him make me miserable. I am usually able to talk sense into him, but I grind my teeth for days and feel like I need to escape. Five years of no meaningful contact with him spoiled me. I'm no way going to suggest diaries or lists or any other therapeutic process for him. He's 23 years old and he needs to figure this stuff out for himself. If he needs the help of a professional, so be it, but there is no way I'm going to try to fill those shoes. It sets us both up for failure, and me for blame.</p></blockquote><p></p>
[QUOTE="witzend, post: 351192, member: 99"] Thanks for the ideas, Star. Sadly, we don't have MS. We have MD. It's not at all the same. When we try to build our affected muscles we permanently destroy them. We don't ever recover anything the way that people with MS can from time to time in their lives. Since the muscles affected are very specific, you can't really just exercise one part of your body, because the affected muscles run throughout out bodies alongside unaffected muscles. There is no treatment and no cure for our MD, and the best we can do is to stay stretched to keep our muscles from in essence hardening. The resistance type exercise you mentioned would be brutally painful and damaging for us. I'm not at all interested in getting that involved in his stuff. Just the phone conversations that I have been having with him make me miserable. I am usually able to talk sense into him, but I grind my teeth for days and feel like I need to escape. Five years of no meaningful contact with him spoiled me. I'm no way going to suggest diaries or lists or any other therapeutic process for him. He's 23 years old and he needs to figure this stuff out for himself. If he needs the help of a professional, so be it, but there is no way I'm going to try to fill those shoes. It sets us both up for failure, and me for blame. [/QUOTE]
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