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<blockquote data-quote="Mattsmom277" data-source="post: 390734" data-attributes="member: 4264"><p>Jena, on the chance that it might be MS, I have some small ideas that can help to a degree. They are just as likely to help even with another diagnosis but specific to a possibility of MS, I'll just share from my experiences.</p><p></p><p>Sounds like heat affects you. Same here! No matter how great a day I'm having, hot showers? Out. Likewise really cold showers, but hot hot showers are a no no. I tend to try to shower in the evenings before bed as even a warm shower (I refuse to freeze while showering even though I won't put it really hot) at times can bring on fatigue and soreness. Then if I'm really sore, a Voltaren type creme is a great recommendation. I haven't tried that specific brand, but I do use a few others depending on what i think might help soothe me a bit. A535 stinks and heats up briefly before working deep into muscle groups. (Personally love the smell but really is a "only use when not going out on the town" creme lol) I also use Aspercreme, which doesn't give a burn when applying but does get deep into the muscles with no odor. After a bedtime shower and the creme working into the tissues, I can often relax more to get a better night sleep which goes a long way toward helping the next day with stiffness and pain.</p><p></p><p>I allow my body to have a rest through the day if I feel myself waning. Sometimes it is missing words or jumbling a sentence that alerts me I'm waning, before my body itself starts sending me that message. Often a nap for an hour, or even just a quiet room to lay down and read or watch a t.v. show, can offer a body rest enough to put me back on track to finish my day with less problems. Ignoring these things throughout the day in the past and not doing something to listen to my body and heed its warnings, usually leads to increased pain or spasms or nerve pains, worse speech problems and more vision issues. When I finally realized I wasn't going to be a martyr anymore, and started heeded my bodies signs for a wee break, it helped me a lot. Not a magic solution but definitely I have learned my quality of life improves substantially from giving up the naive idea that just pushing through it all with a stiff upper lip was somehow a strength of mine. It led me to worse problems lol. Now I make no excuses or apologies, I just take care of myself for a time, then get back up and at em.</p><p></p><p>The blurry vision thing, even though MRI's etc are very pricey, can you possibly find the cash to go for a new eye exam? Even a good eye exam in recent history can have a different result when blurry vision is creepy in. When my vision is really acting up, I pop in to have a quick and specific couple of tests done, including pictures of my optic nerves. Best results for possible problems are right away when the problem occurs. The optic nerve pictures are not pricey and even if budget is too tight for more testing, most good eye docs will let you come in for just the optic nerve pics when problems with blurring etc are cropping up whilst awaiting further neuro testing. </p><p></p><p>Sounds like you have a good grasp on vitamin supplements. Just a small word of warning about taking upper level recommended dosages, some people, many really, can't handle the highest dosages. Everyone metabolizes differently and for some the highest doses can be harmful even when it is generally considered a safe level. You did not mention Vitamin D supplements specifically. This is a definite leading cause of vitamin deficiency related neuro issues, and sometimes lab results are misleading with Vit D. I was also told by specialist that for some people, even if lab levels show in normal range, if its in the lower range OR the very upper range, it indicates for THEM, that the numbers are in fact not okay for them. For some, too low leads to neuro deficits that very closely mimic several other more serious diagnosis's (including MS type symptoms). Likewise with levels in higher range of the normal spectrum, for some it actually indicates a toxic level. If you have any labs that tested for Vit D and the levels are not clearly in the mid norm range, it can indicate a chance to work on that to possibly rule it in or out. Lower end, Vit D supplements. Upper levels, speaking with doctor about ways to get a healthy level but bring the levels down a bit through diet etc. I was told by several specialists that long term levels of Vit D deficiency is often a unknown cause of serious neuro issues, and that often if it went on long enough, once levels are brought to better level, sometimes some neuro issues will permanently remain. Thus making careful monitoring of Vit D levels really important when having neuro issues. I was also told that many with things like MS, do also have coinciding Vit D issues. Definitely overshadowed by the more popular knowledge of a need to keep B12 levels normal. </p><p></p><p>Hang in there, and I hope you get some serious testing done soon. And I'll hope there's an answer that involves a remedy that can get you back to feeling 100%.</p></blockquote><p></p>
[QUOTE="Mattsmom277, post: 390734, member: 4264"] Jena, on the chance that it might be MS, I have some small ideas that can help to a degree. They are just as likely to help even with another diagnosis but specific to a possibility of MS, I'll just share from my experiences. Sounds like heat affects you. Same here! No matter how great a day I'm having, hot showers? Out. Likewise really cold showers, but hot hot showers are a no no. I tend to try to shower in the evenings before bed as even a warm shower (I refuse to freeze while showering even though I won't put it really hot) at times can bring on fatigue and soreness. Then if I'm really sore, a Voltaren type creme is a great recommendation. I haven't tried that specific brand, but I do use a few others depending on what i think might help soothe me a bit. A535 stinks and heats up briefly before working deep into muscle groups. (Personally love the smell but really is a "only use when not going out on the town" creme lol) I also use Aspercreme, which doesn't give a burn when applying but does get deep into the muscles with no odor. After a bedtime shower and the creme working into the tissues, I can often relax more to get a better night sleep which goes a long way toward helping the next day with stiffness and pain. I allow my body to have a rest through the day if I feel myself waning. Sometimes it is missing words or jumbling a sentence that alerts me I'm waning, before my body itself starts sending me that message. Often a nap for an hour, or even just a quiet room to lay down and read or watch a t.v. show, can offer a body rest enough to put me back on track to finish my day with less problems. Ignoring these things throughout the day in the past and not doing something to listen to my body and heed its warnings, usually leads to increased pain or spasms or nerve pains, worse speech problems and more vision issues. When I finally realized I wasn't going to be a martyr anymore, and started heeded my bodies signs for a wee break, it helped me a lot. Not a magic solution but definitely I have learned my quality of life improves substantially from giving up the naive idea that just pushing through it all with a stiff upper lip was somehow a strength of mine. It led me to worse problems lol. Now I make no excuses or apologies, I just take care of myself for a time, then get back up and at em. The blurry vision thing, even though MRI's etc are very pricey, can you possibly find the cash to go for a new eye exam? Even a good eye exam in recent history can have a different result when blurry vision is creepy in. When my vision is really acting up, I pop in to have a quick and specific couple of tests done, including pictures of my optic nerves. Best results for possible problems are right away when the problem occurs. The optic nerve pictures are not pricey and even if budget is too tight for more testing, most good eye docs will let you come in for just the optic nerve pics when problems with blurring etc are cropping up whilst awaiting further neuro testing. Sounds like you have a good grasp on vitamin supplements. Just a small word of warning about taking upper level recommended dosages, some people, many really, can't handle the highest dosages. Everyone metabolizes differently and for some the highest doses can be harmful even when it is generally considered a safe level. You did not mention Vitamin D supplements specifically. This is a definite leading cause of vitamin deficiency related neuro issues, and sometimes lab results are misleading with Vit D. I was also told by specialist that for some people, even if lab levels show in normal range, if its in the lower range OR the very upper range, it indicates for THEM, that the numbers are in fact not okay for them. For some, too low leads to neuro deficits that very closely mimic several other more serious diagnosis's (including MS type symptoms). Likewise with levels in higher range of the normal spectrum, for some it actually indicates a toxic level. If you have any labs that tested for Vit D and the levels are not clearly in the mid norm range, it can indicate a chance to work on that to possibly rule it in or out. Lower end, Vit D supplements. Upper levels, speaking with doctor about ways to get a healthy level but bring the levels down a bit through diet etc. I was told by several specialists that long term levels of Vit D deficiency is often a unknown cause of serious neuro issues, and that often if it went on long enough, once levels are brought to better level, sometimes some neuro issues will permanently remain. Thus making careful monitoring of Vit D levels really important when having neuro issues. I was also told that many with things like MS, do also have coinciding Vit D issues. Definitely overshadowed by the more popular knowledge of a need to keep B12 levels normal. Hang in there, and I hope you get some serious testing done soon. And I'll hope there's an answer that involves a remedy that can get you back to feeling 100%. [/QUOTE]
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