Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
General Discussions
The Watercooler
me
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="Josie" data-source="post: 391295" data-attributes="member: 1792"><p>Jena, there is a huge controversy over Lyme. If you had a positive Elisa test or a positive Western Blot test, you really should look into it. Chances are the "Lyme specialist" you went to follows the IDSA standards of care. The IDSA uses the CDC reporting criteria as definitive for Lyme. The CDC requires 5 bands on the WB IgG test or 2 bands on the IgM test to be reportable for Lyme, but even they say that Lyme is a clinical diagnosis and it may be Lyme without meeting the reportable criteria. They say it may require treating even if it isn't reported to them for surveillance purposes. (This is what I have been told and seen in the past, but I am not seeing it on their page in my quick search now.) However, most doctors will not treat without it being CDC positive. Some doctors will. That is what Susie was talking about on her post.</p><p></p><p>Another problem is that some Lyme specific bands are not included in the counted 5 or 2 bands and some that are not specific to Lyme disease are.</p><p></p><p>I can't even really begin to explain all of this in a single post. You really should read the book "Cure Unknown" by Pamela Weintraub and decide for yourself if you think Lyme is worth pursuing. You may come to a different decision than I did, but at least you will be informed. I don't think it is a good thing to just rely on what the specialist said without knowing the other side to the story.</p><p></p><p>Here is an article from Columbia University explaining the controversy. <a href="http://www.columbia-lyme.org/patients/controversies.html" target="_blank">http://www.columbia-lyme.org/patients/controversies.html</a></p></blockquote><p></p>
[QUOTE="Josie, post: 391295, member: 1792"] Jena, there is a huge controversy over Lyme. If you had a positive Elisa test or a positive Western Blot test, you really should look into it. Chances are the "Lyme specialist" you went to follows the IDSA standards of care. The IDSA uses the CDC reporting criteria as definitive for Lyme. The CDC requires 5 bands on the WB IgG test or 2 bands on the IgM test to be reportable for Lyme, but even they say that Lyme is a clinical diagnosis and it may be Lyme without meeting the reportable criteria. They say it may require treating even if it isn't reported to them for surveillance purposes. (This is what I have been told and seen in the past, but I am not seeing it on their page in my quick search now.) However, most doctors will not treat without it being CDC positive. Some doctors will. That is what Susie was talking about on her post. Another problem is that some Lyme specific bands are not included in the counted 5 or 2 bands and some that are not specific to Lyme disease are. I can't even really begin to explain all of this in a single post. You really should read the book "Cure Unknown" by Pamela Weintraub and decide for yourself if you think Lyme is worth pursuing. You may come to a different decision than I did, but at least you will be informed. I don't think it is a good thing to just rely on what the specialist said without knowing the other side to the story. Here is an article from Columbia University explaining the controversy. [URL]http://www.columbia-lyme.org/patients/controversies.html[/URL] [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
General Discussions
The Watercooler
me
Top