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<blockquote data-quote="Abbey" data-source="post: 140831" data-attributes="member: 179"><p>I didn't read all the replies, but I have auto-immune hepatitus. I've been in remission for 8 years. (They said I wouldn't last a year without a transplant.) Oddly enough, that is when I took over the board from Momma Bear because I was bed ridden and bored.</p><p></p><p>It took going to USC and seeing the head of the liver transplant doctor before they correctly diagnosed it. After rapidly going downhill within a month, he took one look at me and said he knew what was wrong. The sad thing is it like looking for a needle in a haystack to know what brings this on. Tylenol and Oriental supplements are on the top of the list, but I didn't do either of them. I still think it is when they found mold and asbestos at a school I taught at years ago. It fit the time of when the disease started.</p><p></p><p>The drugs they have you on are GREAT. Humira was the one that saved my life. It was experimental at the time, but I didn't really have a whole lot to lose. I am supposed to be a lifer for Prednisone, but after high dosages for a couple of years I just couldn't take the side effects anymore. Fingers crossed that I don't have to go back on it ever again.</p><p></p><p>Good luck, and I hope you have a really qualified doctor. The doctor at USC told me that auto-immune hep is one of the hardest things to diagnose and many doctors are not up to date on how to do that.</p><p></p><p>Abbey</p></blockquote><p></p>
[QUOTE="Abbey, post: 140831, member: 179"] I didn't read all the replies, but I have auto-immune hepatitus. I've been in remission for 8 years. (They said I wouldn't last a year without a transplant.) Oddly enough, that is when I took over the board from Momma Bear because I was bed ridden and bored. It took going to USC and seeing the head of the liver transplant doctor before they correctly diagnosed it. After rapidly going downhill within a month, he took one look at me and said he knew what was wrong. The sad thing is it like looking for a needle in a haystack to know what brings this on. Tylenol and Oriental supplements are on the top of the list, but I didn't do either of them. I still think it is when they found mold and asbestos at a school I taught at years ago. It fit the time of when the disease started. The drugs they have you on are GREAT. Humira was the one that saved my life. It was experimental at the time, but I didn't really have a whole lot to lose. I am supposed to be a lifer for Prednisone, but after high dosages for a couple of years I just couldn't take the side effects anymore. Fingers crossed that I don't have to go back on it ever again. Good luck, and I hope you have a really qualified doctor. The doctor at USC told me that auto-immune hep is one of the hardest things to diagnose and many doctors are not up to date on how to do that. Abbey [/QUOTE]
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