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Might I ask for some healing thoughts/beads?
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<blockquote data-quote="Marguerite" data-source="post: 281055" data-attributes="member: 1991"><p>What I did was ask the GP to refer me to a pain management specialist. A GP's help with pain relief is a lot more limited. A pain specialist has access to more resources and ideas (including TNS). I was on a combination of paracetamol and codeine for years (decades) and also dealing with a former friend (then stalker and idiot) who told everyone I was mentally unstable and an addict. Noe of it true, of course.</p><p></p><p>The thing is, if you take strong pain medications FOR PAIN, then addiction isn't an issue. It's when you begin to take the pain medications for the added effects. Me, I hate the feeling of weak throat muscles I get if I take more than I need 9which has happened occasionally). If you match the pain relief to the pain levels, take enough to get the pain under control but not fully eliminated, then you are unlikely to develop an addiction problem.</p><p></p><p>I got to a point where the codeine was not enough. I've been on morphine for 14 years now, although the dose has increased over the years. I recently was able to drop the dose a bit. The thing is, it makes a HHUGE difference to my ability to cope. Without pain medications, I'm a puddle of misery in the corner, unable to move. On the medications, I'm alert, confident, mentally capable and often physically capable. I can almost seem normal.</p><p></p><p>My biggest problem is when something interferes with the system of pain managment we have in place. For example, if I have a gastric bug or food poisoning thta means I can't keep my pain medications down - the resultant increase in pain can lead to more vomiting and shock, which then escalates out of control. Under those circumstances I need to go into hospital for a shot of morphine (often with anti-emetic), wich then can turn around the problem. The problem has been, convincing the hospital that is what I need. The hospital near where we live hasn't been too much of a problem, but on holidays it has been worse sometimes. One hospital tried to tell us they had no pethidine on the premises. Yeah? So how did they treat the car crash victim who was brought in?</p><p>I took to carrying a letter from my pain specialist and from the GP, explaining the case. And in that situation on holiday, the hospital tod us that carrying such a letter was a clear sign of drug-seeling behaviour. husband asked them, "So how should we proceed, if she is genuine?" but they wouldn't answer. Probably didn't want to give us any pointers...</p><p></p><p>The pain specialist hasn't been able to help us overcome this problem, except to say, "Next time get the hospital to call me, whatever time of dsay it is. It is what they should have done that time, too."</p><p></p><p>I don't have MS but a lot of my symptoms are very similar. This has made a huge difference to my ability to live a normal life.</p><p></p><p>The other important advice I can give you - exercise as much as you can but not to the point of exhausting yourself and causing harm. Do the best you can with what you've got, in other words.</p><p></p><p>Life is for living. Go do it.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 281055, member: 1991"] What I did was ask the GP to refer me to a pain management specialist. A GP's help with pain relief is a lot more limited. A pain specialist has access to more resources and ideas (including TNS). I was on a combination of paracetamol and codeine for years (decades) and also dealing with a former friend (then stalker and idiot) who told everyone I was mentally unstable and an addict. Noe of it true, of course. The thing is, if you take strong pain medications FOR PAIN, then addiction isn't an issue. It's when you begin to take the pain medications for the added effects. Me, I hate the feeling of weak throat muscles I get if I take more than I need 9which has happened occasionally). If you match the pain relief to the pain levels, take enough to get the pain under control but not fully eliminated, then you are unlikely to develop an addiction problem. I got to a point where the codeine was not enough. I've been on morphine for 14 years now, although the dose has increased over the years. I recently was able to drop the dose a bit. The thing is, it makes a HHUGE difference to my ability to cope. Without pain medications, I'm a puddle of misery in the corner, unable to move. On the medications, I'm alert, confident, mentally capable and often physically capable. I can almost seem normal. My biggest problem is when something interferes with the system of pain managment we have in place. For example, if I have a gastric bug or food poisoning thta means I can't keep my pain medications down - the resultant increase in pain can lead to more vomiting and shock, which then escalates out of control. Under those circumstances I need to go into hospital for a shot of morphine (often with anti-emetic), wich then can turn around the problem. The problem has been, convincing the hospital that is what I need. The hospital near where we live hasn't been too much of a problem, but on holidays it has been worse sometimes. One hospital tried to tell us they had no pethidine on the premises. Yeah? So how did they treat the car crash victim who was brought in? I took to carrying a letter from my pain specialist and from the GP, explaining the case. And in that situation on holiday, the hospital tod us that carrying such a letter was a clear sign of drug-seeling behaviour. husband asked them, "So how should we proceed, if she is genuine?" but they wouldn't answer. Probably didn't want to give us any pointers... The pain specialist hasn't been able to help us overcome this problem, except to say, "Next time get the hospital to call me, whatever time of dsay it is. It is what they should have done that time, too." I don't have MS but a lot of my symptoms are very similar. This has made a huge difference to my ability to live a normal life. The other important advice I can give you - exercise as much as you can but not to the point of exhausting yourself and causing harm. Do the best you can with what you've got, in other words. Life is for living. Go do it. Marg [/QUOTE]
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