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Might I ask for some healing thoughts/beads?
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<blockquote data-quote="Mattsmom277" data-source="post: 281079" data-attributes="member: 4264"><p>Thank you all again for your bead rattling and positive thoughts. Sorry I didn't update yesterday, things got hectic in home life, and then I was in bed early (pain YUCK).</p><p></p><p>So I had yet ANOTHER MS medication added to the cocktail I'm already on. I'm currently on 8 different medications for MS. I'm also on lorazepam. I took it years ago for anxiety but don't really deal with anxiety anymore (YAY!). Now it is prescribed to loosen my muscles, particularly my legs, as they are prone to debilitating spasms that strike without warning. I find the dose too high however when I try to cut back on them, the spasms come back with a fury. So I take the buggers as prescribed after learning the hard way. </p><p></p><p>So yeah. A new MS medication to my cocktail. We also discussed that indeed I need to travel once again to my neurologist. Its a pain to go because I don't drive and it's about 2 hours away. But I have a great neuro so that is good. It will take months to get a appointment anyhow, can worry about the trip when time comes.</p><p></p><p>As for pain medications, he gave me 3 weeks of Tylenol 3 (which honestly, don't do anything for my level of pain. At. All). My doctor is not one who likes to decide what level of pain medication a patient with chronic illness should be in. I think he is trying to be responsable so that he doesn't overprescribe (or in my case under prescribe). So I return to him in 3 weeks to discuss if I see any difference with this new medication he prescribed. I did search some MS forums I have used in past and haven't seen many others who've had much affect with the medication, but I'm goign with an open mind to hope it helps somehow. </p><p></p><p>When I return in 3 weeks he will have a package for me to fill in which is for the pain clinic doctor. I've never been to a pain clinic. Not sure what to expect. Anyhow, I'll get that package to fill in and I'm told to have those close to me to write letters as to what THEY see in terms of my pain and the limits to my life. So my fiance, and both my kids are going to write letters. As well as a friend that pops by when I'm really not doing well. She pops in at those times, periodically and does lovely things like wash up my dishes or do a bit of laundry or vacuum for me or dust etc. These letters will go with the package I fill in to the pain doctor. I'm told that pain doctor can order a tens unit if he thinks it would benefit me. It will probably take a month or more after my referall, which isn't for another 3 weeks. So a couple months before I see him. Sort of disappointing as I'd have liked something to help me be able to function and enjoy the summer holidays with the kids, expecially easy child. But at least it will happen by late summer and I've heard good things about this doctor. If he can help me get back to functioning, I'll be very happy. I don't believe I'll ever again have NO pain. But if it can be controlled enough for me to do day to day activities and maybe get some FUN back to my life, I'll be more than satisfied. </p><p></p><p>If anybody has experience with what happens when you go to a pain management clinic, I would love to know your experience if you are willing to share it. </p><p></p><p>Again all, thank you for your good thoughts!!! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p></p><p>M.</p></blockquote><p></p>
[QUOTE="Mattsmom277, post: 281079, member: 4264"] Thank you all again for your bead rattling and positive thoughts. Sorry I didn't update yesterday, things got hectic in home life, and then I was in bed early (pain YUCK). So I had yet ANOTHER MS medication added to the cocktail I'm already on. I'm currently on 8 different medications for MS. I'm also on lorazepam. I took it years ago for anxiety but don't really deal with anxiety anymore (YAY!). Now it is prescribed to loosen my muscles, particularly my legs, as they are prone to debilitating spasms that strike without warning. I find the dose too high however when I try to cut back on them, the spasms come back with a fury. So I take the buggers as prescribed after learning the hard way. So yeah. A new MS medication to my cocktail. We also discussed that indeed I need to travel once again to my neurologist. Its a pain to go because I don't drive and it's about 2 hours away. But I have a great neuro so that is good. It will take months to get a appointment anyhow, can worry about the trip when time comes. As for pain medications, he gave me 3 weeks of Tylenol 3 (which honestly, don't do anything for my level of pain. At. All). My doctor is not one who likes to decide what level of pain medication a patient with chronic illness should be in. I think he is trying to be responsable so that he doesn't overprescribe (or in my case under prescribe). So I return to him in 3 weeks to discuss if I see any difference with this new medication he prescribed. I did search some MS forums I have used in past and haven't seen many others who've had much affect with the medication, but I'm goign with an open mind to hope it helps somehow. When I return in 3 weeks he will have a package for me to fill in which is for the pain clinic doctor. I've never been to a pain clinic. Not sure what to expect. Anyhow, I'll get that package to fill in and I'm told to have those close to me to write letters as to what THEY see in terms of my pain and the limits to my life. So my fiance, and both my kids are going to write letters. As well as a friend that pops by when I'm really not doing well. She pops in at those times, periodically and does lovely things like wash up my dishes or do a bit of laundry or vacuum for me or dust etc. These letters will go with the package I fill in to the pain doctor. I'm told that pain doctor can order a tens unit if he thinks it would benefit me. It will probably take a month or more after my referall, which isn't for another 3 weeks. So a couple months before I see him. Sort of disappointing as I'd have liked something to help me be able to function and enjoy the summer holidays with the kids, expecially easy child. But at least it will happen by late summer and I've heard good things about this doctor. If he can help me get back to functioning, I'll be very happy. I don't believe I'll ever again have NO pain. But if it can be controlled enough for me to do day to day activities and maybe get some FUN back to my life, I'll be more than satisfied. If anybody has experience with what happens when you go to a pain management clinic, I would love to know your experience if you are willing to share it. Again all, thank you for your good thoughts!!! :) M. [/QUOTE]
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