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MRI Results in already!
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<blockquote data-quote="susiestar" data-source="post: 312580" data-attributes="member: 1233"><p>Thank you all. </p><p></p><p>I, too, thought it was not quite honest to say the MRI was normal but showed a pituitary abnormality. Esp since the pituitary is so small and so powerful.</p><p></p><p>This was NOT the last test to get to a cause. Our pediatrician has wanted Jess to be diagnosis'd with anxiety for years. When she saw Jessie after being thrown from a horse in 5th grade she tried to say the pain in her tailbone was anxiety and not from landing on it. </p><p></p><p>There used to be only one pediatric practice in town because this one either hired the other docs in or ran them out of town by refusing to answer calls for any of their patients at any time, though the other docs covered theirs. We now have a practice that has enough docs to cover for each other and we will be switching soon. </p><p></p><p>The neuro did 7 sets of blood tests, an exam and the MRI. That is ALL the testing that has been done. This was NOT the last test to rule out physical problems. Neuro even spoke about it being caused by any of a wide variety of things from many specialties. HE mentioned fibromyalgia as a cause - which runs in families and my mom and I both have and we think my mom's dad had. He said if it is autoimmune then it could take years of testing and persistence to find a cause. HIS WORDS. </p><p></p><p>then the very next I hear from him he is gruff and acts like I am a bother and a nuisance. Not going to work. </p><p></p><p>The medications that are usually used for Absence seizures are lamictal, zarontin and depakene. If they insist on brand names we won't be able to afford them. The switch can be a problem but we don't really have a financial choice. Luckily these are in generic so we can start with them. </p><p></p><p>The endocrin doctor was not in today - the office is closed on Fridays, so we will see what he says on Monday. </p><p></p><p>Your support and ideas and interest is invaluable to Jessie and I. Thank you all so much!</p></blockquote><p></p>
[QUOTE="susiestar, post: 312580, member: 1233"] Thank you all. I, too, thought it was not quite honest to say the MRI was normal but showed a pituitary abnormality. Esp since the pituitary is so small and so powerful. This was NOT the last test to get to a cause. Our pediatrician has wanted Jess to be diagnosis'd with anxiety for years. When she saw Jessie after being thrown from a horse in 5th grade she tried to say the pain in her tailbone was anxiety and not from landing on it. There used to be only one pediatric practice in town because this one either hired the other docs in or ran them out of town by refusing to answer calls for any of their patients at any time, though the other docs covered theirs. We now have a practice that has enough docs to cover for each other and we will be switching soon. The neuro did 7 sets of blood tests, an exam and the MRI. That is ALL the testing that has been done. This was NOT the last test to rule out physical problems. Neuro even spoke about it being caused by any of a wide variety of things from many specialties. HE mentioned fibromyalgia as a cause - which runs in families and my mom and I both have and we think my mom's dad had. He said if it is autoimmune then it could take years of testing and persistence to find a cause. HIS WORDS. then the very next I hear from him he is gruff and acts like I am a bother and a nuisance. Not going to work. The medications that are usually used for Absence seizures are lamictal, zarontin and depakene. If they insist on brand names we won't be able to afford them. The switch can be a problem but we don't really have a financial choice. Luckily these are in generic so we can start with them. The endocrin doctor was not in today - the office is closed on Fridays, so we will see what he says on Monday. Your support and ideas and interest is invaluable to Jessie and I. Thank you all so much! [/QUOTE]
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