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MS/Lymes--Anyone have them? How do you get a diagnosis?
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<blockquote data-quote="Mattsmom277" data-source="post: 281318" data-attributes="member: 4264"><p>I have MS. It is often found after they rule out everything else. It for me and many others is a long and frustrating process. CT scan will do nothing to help diagnose MS for example, but can help pinpoint if other things are the cause of your problems.</p><p>I was sent to someone for EMG testing on my arms and legs. This ruled out parkinsons and trapped nerves etc. And showed that although no proof of a cause, that signals to my nerves were not connecting properly from my brain.</p><p>I had MRI with and without contrast on my head, and my upper and lower spine. That one came back okay, or rather "inconclusive". That frustrated me. </p><p>I had a ton of blood and urine tests. I saw a endocronologist. More tests.</p><p>Finally I was at a neurologist. We decided on a repeat MRI. And then lesions were found and MS was able to be diagnosed. Sometimes lesions won't show on MRI. Sometimes if nothing else is showing up and they believe MS is likely after ruling out other things, they will order a spinal tap. In MS patients, our spinal fluid contains things called "O bands". (obligonal bands). It is painful as all get out, but often so helpful to getting a diagnosis. </p><p>Now meanwhile, even if they do not know what is causing your problems, they can treat symptoms. I was on medications long before a official diagnosis. They used medications to treat my vision, my vertigo, my leg spasms, my leg weakness, my pins/needles awful feelings in my limbs, my bladder problems etc. So at the minimum, while this neuro is investigating what the problem could be, ask for some help in treating the symptoms. Most will be more than willing to treat the symptoms. </p><p>Best of luck to you, I hope you get your answers soon.</p></blockquote><p></p>
[QUOTE="Mattsmom277, post: 281318, member: 4264"] I have MS. It is often found after they rule out everything else. It for me and many others is a long and frustrating process. CT scan will do nothing to help diagnose MS for example, but can help pinpoint if other things are the cause of your problems. I was sent to someone for EMG testing on my arms and legs. This ruled out parkinsons and trapped nerves etc. And showed that although no proof of a cause, that signals to my nerves were not connecting properly from my brain. I had MRI with and without contrast on my head, and my upper and lower spine. That one came back okay, or rather "inconclusive". That frustrated me. I had a ton of blood and urine tests. I saw a endocronologist. More tests. Finally I was at a neurologist. We decided on a repeat MRI. And then lesions were found and MS was able to be diagnosed. Sometimes lesions won't show on MRI. Sometimes if nothing else is showing up and they believe MS is likely after ruling out other things, they will order a spinal tap. In MS patients, our spinal fluid contains things called "O bands". (obligonal bands). It is painful as all get out, but often so helpful to getting a diagnosis. Now meanwhile, even if they do not know what is causing your problems, they can treat symptoms. I was on medications long before a official diagnosis. They used medications to treat my vision, my vertigo, my leg spasms, my leg weakness, my pins/needles awful feelings in my limbs, my bladder problems etc. So at the minimum, while this neuro is investigating what the problem could be, ask for some help in treating the symptoms. Most will be more than willing to treat the symptoms. Best of luck to you, I hope you get your answers soon. [/QUOTE]
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MS/Lymes--Anyone have them? How do you get a diagnosis?
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