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Multiple Complex Developmental Disorder
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<blockquote data-quote="seriously" data-source="post: 446396" data-attributes="member: 11920"><p>No, I was honest with Camp Oasis about his 2 recent psychiatric hospital and they said "Um no, we don't think he's stable enough to come down here." which was actually fine with me. I just wanted them to be the ones to say no instead of me.</p><p></p><p>He did go to camp in Livermore and "did fine" according to the adult medical staff. According to difficult child 2 all was NOT fine but I think whatever the problems they all happened at the cabin counselor level and didn't get brought to the adult staff. The medical staff did admit (when questioned) that they had to give him medications to help him sleep the first 3 nights and that he was up at 6 am long before everyone else every day. when you look at the photos from camp you hardly see him in them. He says he didn't do any of the evening activities - he was too tired. I tried to e-mail the camp and ask for info from the camp counselors but got no reply.</p><p></p><p>The evaluation hasn't happened yet. The first step is to do the history with the social worker who then summarizes it for the psychologist and passes on the records so she can decide what assessments to start with and how many hours to ask for from the insurance company. I'm still waiting to hear about an appointment. I'm guessing it will be September at the earliest given that we still haven't heard yet.</p><p></p><p>The psychologist is supposed to be really good. She's on staff at the MIND Institute. And she will be drowning in records. I put together a DVD with scanned PDF or digital copies of every report and assessment he's had done since he was 6. Including his neonatal hospital record complete with APGAR's. I already maintain a summary of all the assessment results in a Word document to make it easy to see who did what and what were the results. I added a side bar of comments about things that were going on at the same time as the assessments. That list now runs to 14 pages. A while back I put together a different summary that's a time line based on his hearing loss. I did that when I got the head of assessment at the school for the deaf to look over his records 3 years ago. I updated that because it does a better job of giving a comprehensive picture. It includes hearing loss, health conditions/procedures/crises, assessments, medications, school placement by school year.</p><p></p><p>So she won't be able to complain about a lack of records. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p></blockquote><p></p>
[QUOTE="seriously, post: 446396, member: 11920"] No, I was honest with Camp Oasis about his 2 recent psychiatric hospital and they said "Um no, we don't think he's stable enough to come down here." which was actually fine with me. I just wanted them to be the ones to say no instead of me. He did go to camp in Livermore and "did fine" according to the adult medical staff. According to difficult child 2 all was NOT fine but I think whatever the problems they all happened at the cabin counselor level and didn't get brought to the adult staff. The medical staff did admit (when questioned) that they had to give him medications to help him sleep the first 3 nights and that he was up at 6 am long before everyone else every day. when you look at the photos from camp you hardly see him in them. He says he didn't do any of the evening activities - he was too tired. I tried to e-mail the camp and ask for info from the camp counselors but got no reply. The evaluation hasn't happened yet. The first step is to do the history with the social worker who then summarizes it for the psychologist and passes on the records so she can decide what assessments to start with and how many hours to ask for from the insurance company. I'm still waiting to hear about an appointment. I'm guessing it will be September at the earliest given that we still haven't heard yet. The psychologist is supposed to be really good. She's on staff at the MIND Institute. And she will be drowning in records. I put together a DVD with scanned PDF or digital copies of every report and assessment he's had done since he was 6. Including his neonatal hospital record complete with APGAR's. I already maintain a summary of all the assessment results in a Word document to make it easy to see who did what and what were the results. I added a side bar of comments about things that were going on at the same time as the assessments. That list now runs to 14 pages. A while back I put together a different summary that's a time line based on his hearing loss. I did that when I got the head of assessment at the school for the deaf to look over his records 3 years ago. I updated that because it does a better job of giving a comprehensive picture. It includes hearing loss, health conditions/procedures/crises, assessments, medications, school placement by school year. So she won't be able to complain about a lack of records. :) [/QUOTE]
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