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My poor easy child medical trauma... Update 5-20
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<blockquote data-quote="slsh" data-source="post: 43931" data-attributes="member: 8"><p>MIT - I'm *so* sorry you're dealing with- this. Will they be doing a Nissen fundoplication as well, or just placing the g-tube?</p><p></p><p>Boo has had a g-tube since 1991 - in his case, it was due to a failure to thrive in spite of massive efforts with- therapy to get oral motor skills up to snuff and the chew, swallow, breathe thing down. We opted not to do the Nissen, which in the long run was probably the best choice for him. He has had a couple of extended episodes of reflux esophagitis but we've been able to manage medically. (Knocking hard on wood) Boo hasn't yet had pneumonia, though we of course are constantly on the look out for aspiration, etc. </p><p></p><p>The decision to place the g-tube was probably *the* hardest decision we've ever made - I was a complete wreck and felt like such a failure. Like you, I really didn't want to take away the option of oral feeds, but on the other hand, oral feeds just weren't doing the trick. </p><p></p><p>We do continuous feeds using a pump at night. He is able to eat "normally" during the day, though fatigue and lousy motor skills are still a problem, but at least he gets the social benefits of a meal and he does love his pizza and ice cream. I also have to say, when he's been sick the g-tube has really come in handy. Dehydration is always right around the corner with- him and by having the g-tube we can be sure he's getting enough fluids. medication administration is also easy - Boo would never be able to swalling the capsules and pills for his epilepsy, so we just slip it in the g-tube.</p><p></p><p>You're in my thoughts. I hope it goes well. Do keep us updated on the therapy - I've never heard of that. Sending up strong vibes that this will need to just be a temporary fix and that he can get back to total oral feeds without the risk of aspiration.</p><p></p><p>*So* glad to hear he's recovered from the pneumonia!!</p></blockquote><p></p>
[QUOTE="slsh, post: 43931, member: 8"] MIT - I'm *so* sorry you're dealing with- this. Will they be doing a Nissen fundoplication as well, or just placing the g-tube? Boo has had a g-tube since 1991 - in his case, it was due to a failure to thrive in spite of massive efforts with- therapy to get oral motor skills up to snuff and the chew, swallow, breathe thing down. We opted not to do the Nissen, which in the long run was probably the best choice for him. He has had a couple of extended episodes of reflux esophagitis but we've been able to manage medically. (Knocking hard on wood) Boo hasn't yet had pneumonia, though we of course are constantly on the look out for aspiration, etc. The decision to place the g-tube was probably *the* hardest decision we've ever made - I was a complete wreck and felt like such a failure. Like you, I really didn't want to take away the option of oral feeds, but on the other hand, oral feeds just weren't doing the trick. We do continuous feeds using a pump at night. He is able to eat "normally" during the day, though fatigue and lousy motor skills are still a problem, but at least he gets the social benefits of a meal and he does love his pizza and ice cream. I also have to say, when he's been sick the g-tube has really come in handy. Dehydration is always right around the corner with- him and by having the g-tube we can be sure he's getting enough fluids. medication administration is also easy - Boo would never be able to swalling the capsules and pills for his epilepsy, so we just slip it in the g-tube. You're in my thoughts. I hope it goes well. Do keep us updated on the therapy - I've never heard of that. Sending up strong vibes that this will need to just be a temporary fix and that he can get back to total oral feeds without the risk of aspiration. *So* glad to hear he's recovered from the pneumonia!! [/QUOTE]
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My poor easy child medical trauma... Update 5-20
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